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Quality of life of women with systemic lupus erythematosus or rheumatoid arthritis: Domains of importance and dissatisfaction

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Abstract

The aim of this study was to increase understanding of the domains of life that are important to Swedish women with chronic rheumatic disease and to describe their dissatisfaction with these domains. Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were interviewed by telephone regarding their quality of life using five open-ended questions. Content analysis of their responses revealed nine categories: Health/wellness, Family/friends, Work, House/home/living environment, Social support/functional services, Hobbies/cultural activities, Sufficient income, Independence, Integrity/identity. Areas of importance correspond closely to those areas with which they were most dissatisfied. Although the domains identified in both groups were the same, SLE patients expressed more dissatisfaction with their perceived control over their bodies and understanding about their condition on the part of physicians and people in general. RA patients were more dissatisfied with areas of their lives that threatened their independence. Health care providers should be aware of these areas of dissatisfaction so that they can plan strategies to maximize patient quality of life.

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References

  1. Bombardier C, Ware J, Russell J, Larson M, Chalmers A, Leighton R. Airanofin therapy and quality of life in patients with rheumatoid arthritis. Am J Med 1986; 4: 565–578.

    Google Scholar 

  2. Borstlap M, Zant JL, van Soesbergen RM, van der Korst JK. Quality of life assessment: a comparison of four questionnaires for measuring improvements after total hip replacement. Clin Rheumatol 1995; 1: 15–20.

    Google Scholar 

  3. Whalley D, McKenna SP, de Jong Z, van der Heijde D. Quality of life in rheumatoid arthritis. Br J Rheumatol 1997; 36: 884–888.

    Google Scholar 

  4. Krol B, Sanderman R, Suurmeijer TP. Social support, rheumatoid arthritis and quality of life: concepts, measurement and research. Patient Education and Counseling 1993; 20: 101–120.

    Google Scholar 

  5. Fries JF, Ramey DR. ''Arthritis specific'' global health analog scales assess ''generic'' health related quality-of-life in patients with rheumatoid arthritis. J Rheumatol 1997; 24: 1697–1702.

    Google Scholar 

  6. Bendtsen P, Hornquist JO. Severity of rheumatoid ar-thritis, function and quality of life: sub-group com-parisons. Clin Exp Rheumatol 1993; 11: 495–502.

    Google Scholar 

  7. Hanly JG. Disease activity, cumulative damage and quality of life in systemic lupus erythematosus: result of a cross-sectional study. Lupus 1997; 6: 243–247.

    Google Scholar 

  8. Bekkelund SI, Husby G, Mellgren SI. Quality of life in rheumatoid arthritis: a case control study in patients living in the northern Norway. Clin Exp Rheumatol 1995; 13: 471–475.

    Google Scholar 

  9. Zaitra AJ, Burleson MH, Smith CA, et al. Arthritis and perceptions of quality of life: an examination of positive and negative e.ect in rheumatoid arthritis patients. Health Psychol 1995; 14: 399–408.

    Google Scholar 

  10. Burckhardt CS, Archenholtz B, Bjelle A. Quality of life of women with systemic lupus erythematosus: A comparison with women with rheumatoid arthritis. J Rheumatol 1993; 20: 977–981.

    Google Scholar 

  11. Gill TM, Feinstein AR. A critical appraisal of the quality of the Quality-of-life measurements. JAMA 1994; 8: 619–626.

    Google Scholar 

  12. Leplege A, Hunt S. The problem of quality of life in medicine. JAMA 1997; 278: 47–50.

    Google Scholar 

  13. Flanagan JC. A research approach to improving our quality of life. American Psychologist 1978; 33: 138–147.

    Google Scholar 

  14. WHOQOL Group. Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Quality of Life Res 1993; 2: 153–159.

    Google Scholar 

  15. Ferrans CE, Powers MJ. Quality of life index: Devel-opment and psychometric properties. Adv Nurs Sci 1985; 8: 15–24.

    Google Scholar 

  16. Tan EM, Chen AS, Fries JF et al. The 1982 revised criteria for the classifition of systemic lupus erythematosus. Arthritis Rheum 1982; 25: 1271–1277.

    Google Scholar 

  17. Arnett FC, Edworthy SM, Bloch DA et al. The American Rheumatism Association 1987 revised crite-ria for the classification of rheumatoid arthritis. Arthritis Rheum 1988; 31: 315–324.

    Google Scholar 

  18. Burckhardt CS, Woods SL, Schultz AA, Ziebarth DM. Quality of life in adults with chronic illness: A psycho-metric study. Research in Nursing & Health 1989; 12: 347–354.

    Google Scholar 

  19. Padilla GV, Ferrell B, Grant MM, Rhiner M. Defining the content domain of quality of life for cancer patients with pain. Cancer Nursing 1990; 13: 108–115.

    Google Scholar 

  20. Waltz CF, Strickland OL, Lenz ER. Measurement in nursing research. Philadelphia: FA Davis, 1984.

    Google Scholar 

  21. Burckhardt CS. The impact of quality of life. Nursing Research 1985; 34: 11–16.

    Google Scholar 

  22. Cornwell CJ, Schmitt MH. Perceived health status, self-esteem and body image in women with rheumatoid arthritis or systemic lupus erythematosus. Research in Nursing & Health 1990; 13: 99–107.

    Google Scholar 

  23. Brown S, Williams A. Women's experiences of rheu-matoid arthritis. J Advanced Nursing 1995; 21: 695–701.

    Google Scholar 

  24. Krupp LB, LaRocca NG, Muir J, Steinberg AD. A study of fatigue in systemic lupus erythematosus. J Rheumatol 1990; 17: 1450–1452.

    Google Scholar 

  25. Gladman DD, Urowitz MB, Gough J, McKinnon A. Fibromyalgia is a major contributor to quality of life in lupus. J Rheumatol 1997; 24: 2145–2148.

    Google Scholar 

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Archenholtz, B., Burckhardt, C.S. & Segesten, K. Quality of life of women with systemic lupus erythematosus or rheumatoid arthritis: Domains of importance and dissatisfaction. Qual Life Res 8, 411–416 (1999). https://doi.org/10.1023/A:1008915115370

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  • DOI: https://doi.org/10.1023/A:1008915115370

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