The burden of rheumatoid arthritis: Tolerating the uncertainty
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Cited by (144)
Acceptance rate and sociological factors involved in the switch from originator to biosimilar etanercept (SB4)
2019, Seminars in Arthritis and RheumatismCitation Excerpt :In patient perception, the switch might be felt as the introduction of a new (different) drug, therefore introducing uncertainty in their treatment. Uncertainty takes a major toll on RA patient's daily burden [23], and the relevance of this assumption is supported by the fact that all patients refusing the switch reported that the fear of a loss of efficacy was one of the main reason for their choice. Moreover, the switch might also introduce uncertainty in patient-physician relationship with the idea that the prescriber is taking into account treatment costs over its efficacy and patient's own benefit.
Families' experiences of living with pediatric epilepsy: A qualitative systematic review
2016, Epilepsy and BehaviorCitation Excerpt :Cutting across many of these issues, the challenge of experiencing what is perceived to be a ‘normal’ childhood emerged as a dominant theme across the studies. First, normalization may involve ‘keeping up’ a normal lifestyle [37] either by seeking to maintain previous everyday practices in the face of change brought about by an illness or by ‘keeping up’ with peers. There was little within the studies that gave a before/after picture of change arising from the onset of epilepsy among the children, so there was little mention of this form of normalization.
"I suddenly felt I'd aged": A qualitative study of patient experiences of polymyalgia rheumatica (PMR)
2015, Patient Education and CounselingCitation Excerpt :These particular difficulties contributed to a sense of helplessness and vulnerability and exemplify the overlap between the themes of disability and the psychological impact of the condition. The relatively rapid change in people's ability to carry out every day activities was associated with disruption of normal roles, ‘loss of self’ and a sense of uncertainty as has been described in studies of other long term conditions [16,17,21]. Another striking emergent theme from these interviews was the profound psychological impact of the symptoms of PMR prior to diagnosis.
Quality-of-life trajectories in epilepsy: A review of the literature
2008, Epilepsy and BehaviorCitation Excerpt :Social scientific studies of chronic illness offer a number of concepts useful for explaining the personal impacts of a diagnosis of epilepsy. First, chronic illness has been characterized as a situation of uncertainty about etiology, progression, and severity and unpredictability of symptom manifestations, within which patients face a psychological juggling act, balancing the hope of remission against the dread of regression [136]. Second, chronic illness has been conceptualized as a particular kind of disruptive life experience [24,137]: with disruption of taken-for-granted assumptions and behaviors; of the normal rules of reciprocity with others and mutual support; and of a person’s life biography.
Getting back to normal? Identity and role disruptions among adults with Long COVID
2023, Sociology of Health and IllnessTHE EXPERIENCE OF ILLNESS
2022, The Experience of Illness