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Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture

  • Trauma Surgery
  • Published:
Archives of Orthopaedic and Trauma Surgery Aims and scope Submit manuscript

Abstract

Objective

To examine experiences and behaviours with bone health management post-fracture among members of a national osteoporosis (OP) patient group.

Methods

A qualitative study was conducted in English-speaking members of the group who had sustained a fragility fracture at 50+ years old and were not taking OP pharmacotherapy at the time of that fracture. Participants were recruited through an advertisement in the patient group newsletter and interviewed for ~1 h by telephone, responding to questions regarding visits to health care providers and their behaviours regarding bone health. We analysed the data following Giorgi’s methodology.

Results

Twenty-eight eligible participants (26 females, two males; 78 % response rate) aged 51–89 years old completed an interview. More than half of our participants described effective consumer behaviours, including making requests of health care providers for referrals to bone specialists, bone mineral density tests, and prescription medication.

Conclusion

Members of an OP patient group described effective consumer behaviours that could be incorporated as skill sets in post-fracture interventions to improve bone health.

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References

  1. Powell CK, Hill EG, Clancy DE (2007) The relationship between health literacy and diabetes knowledge and readiness to take health actions. Diabetes Educ 33:144–151. doi:10.1177/0145721706297452

    Article  PubMed  Google Scholar 

  2. Rasmussen B, Wellard S, Nankervis A (2001) Consumer issues in navigating health care services for type I diabetes. J Clin Nurs 10:628–634

    Article  CAS  PubMed  Google Scholar 

  3. Epstein RM, Street RL (2011) The values and value of patient-centred care. Ann Family Med 9:100–103

    Article  PubMed Central  PubMed  Google Scholar 

  4. Finset A (2011) Research on person-centred clinical care. J Eval Clin Pract 17:384–386

    Article  PubMed  Google Scholar 

  5. Cloninger CR (2011) Person-centred integrative care. J Eval Clin Pract 17:371–372

    Article  PubMed  Google Scholar 

  6. Mezzich JE, Snaedal J, van Weel C, Botbol M, Salloum I (2011) Introduction to person-centred medicine: from concepts to practice. J Eval Clin Pract 17:330–332

    Article  PubMed  Google Scholar 

  7. Miles A, Mezzich JE (2011) The care of the patient and the soul of the clinic: person-centred medicine as an emergent model of modern clinical practice. Int J Person Cent Med 1:207–222

    Google Scholar 

  8. Kristjansson E, Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O’Connor AM, Qualman A, Santesso N, Wale J, Wells GA (2007) Development of the effective musculoskeletal consumer scale. J Rheumatol 34:1392–1400. pii:0315162X-34-1392

    PubMed  Google Scholar 

  9. Hibbard JH, Stockard J, Mahoney ER, Tusler M (2004) Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res 39:1005–1026. doi:10.1111/j.1475-6773.2004.00269.x

    Article  PubMed  Google Scholar 

  10. Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O’Connor AM, Qualman A, Santesso N, Wale J, Wells GA (2005) Attributes and skills of an effective musculoskeletal consumer. J Rheumatol 32:2257–2261. pii:0315162X-32-2257

    PubMed  Google Scholar 

  11. Bastiaens H, van Royen P, Pavlic DR, Raposo V, Baker R (2007) Older people’s preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Educ Couns 68:33–42

    Article  PubMed  Google Scholar 

  12. Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30

    Article  CAS  PubMed  Google Scholar 

  13. Thompson SC, Pitts JS, Schwankovsky L (1993) Preferences for involvement in medical decision-making: situational and demographic influences. Patient Educ Couns 22:133–140

    Article  CAS  PubMed  Google Scholar 

  14. Beisecker AE, Beisecker TD (1990) Patient information-seeking behaviours when communicating with doctors. Med Care 28:19–28

    Article  CAS  PubMed  Google Scholar 

  15. Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K (2010) Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol 21:1145–1151

    Article  CAS  PubMed  Google Scholar 

  16. Thorne SE, Nyhlin KT, Paterson BL (2000) Attitudes toward patient expertise in chronic illness. Int J Nurs Stud 37:303–311

    Article  CAS  PubMed  Google Scholar 

  17. Giangregorio L, Papaioannou A, Cranney A, Zytaruk N, Adachi JD (2006) Fragility fractures and the osteoporosis care gap: an international phenomenon. Semin Arthritis Rheum 35:293–305

    Article  CAS  PubMed  Google Scholar 

  18. Rabenda V, Vanoverloop J, Fabri V, Mertens R, Sumkay R, Vannecke C, Andre D, Verpooten GA, Reginster J (2008) Low incidence of anti-osteoporosis treatment after hip fracture. J Bone Joint Surg Am 90:2142–2148

    Article  PubMed  Google Scholar 

  19. Sale JEM, Beaton D, Posen J, Elliot-Gibson V, Bogoch E (2011) Systematic review on interventions to improve osteoporosis investigation and treatment in fragility fracture patients. Osteoporos Int 22:2067–2082

    Article  CAS  PubMed  Google Scholar 

  20. Little EA, Eccles MP (2010) A systematic review of the effectiveness of interventions to improve post-fracture investigation and management of patients at risk of osteoporosis. Implement Sci 5:80

    Article  PubMed Central  PubMed  Google Scholar 

  21. Williamson C (1998) The rise of doctor-patient working groups. BMJ 317:1374–1377

    Article  CAS  PubMed  Google Scholar 

  22. Jasper MA (1994) Issues in phenomenology for researchers of nursing. J Adv Nurs 19:309–314

    Article  CAS  PubMed  Google Scholar 

  23. Rice PL, Ezzy D (2000) Qualitative research methods. Oxford University Press, South Melbourne

    Google Scholar 

  24. Kvale S (1996) Interviews: an introduction to qualitative research interviewing. Sage Publications, Thousand Oaks

    Google Scholar 

  25. NVivo 10 [Computer Program] (2010) Qualitative Solutions and Research Pty Ltd, Victoria, Australia

  26. Giorgi A (1989) Some theoretical and practical issues regarding the psychological phenomenological method. Saybrook Rev 7:71–85

    Google Scholar 

  27. Giorgi A (1997) The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. J Phenomenol Psychol 28:235–260

    Article  Google Scholar 

  28. Kvale S, Brinkmann S (2009) Interviews: learning the craft of qualitative research interviewing. Sage Publications Ltd, Thousand Oaks

    Google Scholar 

  29. Giorgi A (2008) Concerning a serious misunderstanding of the essence of the phenomenological method in psychology. J Phenomenol Psychol 39:33–58

    Article  Google Scholar 

  30. Wertz FJ (2005) Phenomenological research methods for counseling psychology. J Couns Psychol 52:167–177

    Article  Google Scholar 

  31. Gearing RE (2004) Bracketing in research: a typology. Qual Health Res 14:1429–1452. doi:10.1177/1049732304270394

    Article  PubMed  Google Scholar 

  32. Creswell JW (1998) Qualitative inquiry and research design: choosing among five traditions. Sage Publications, Thousand Oaks

    Google Scholar 

  33. Polkinghorne DE (1989) Phenomenological research methods. In: Valle RS, Halling S (eds) Existential-phenomenological perspectives in psychology. Plenum Press, New York, pp 41–60

    Chapter  Google Scholar 

  34. Audulv A, Asplund K, Norbergh K-G (2010) Who’s in charge? The role of responsibility attribution in self-management among people with chronic illness. Patient Educ Couns 81:94–100

    Article  PubMed  Google Scholar 

  35. Koch T, Jenkin P, Kralik D (2004) Chronic illness self-management: locating the ‘self’. J Adv Nurs 48:484–492

    Article  PubMed  Google Scholar 

  36. Coleman EA, Smith JD, Frank JC, Min SJ, Parry C, Kramer AM (2004) Preparing patients and caregivers to participate in care delivered across settings: the care transitions intervention. J Am Geriatr Soc 52:1817–1825. doi:10.1111/j.1532-5415.2004.52504.x

    Article  PubMed  Google Scholar 

  37. Michie S, Miles J, Weinman J (2002) Patient-centeredness in chronic illness: what is it and does it matter? Patient Educ Couns 51:197–206

    Article  Google Scholar 

  38. Lawn S, McMillan J, Pulvirenti M (2011) Chronic condition self-management: expectations of responsibility. Patient Educ Couns 84:e5–e8

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

Funding for this project was provided by the Canadian Institutes of Health Research (CBO-109629). Joanna Sale was in part, funded by the Ontario Ministry of Health and Long-Term Care, Osteoporosis Strategy. Views expressed are those of the researchers and not the Ministry.

Conflict of interest

The authors report no potential, perceived, or real conflicts of interest.

Author information

Authors and Affiliations

  1. Mobility Program Clinical Research Unit, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, 30 Bond Street, Toronto, ON, M5B 1W8, Canada

    Joanna E. M. Sale & Cathy Cameron

  2. Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada

    Joanna E. M. Sale & Gillian Hawker

  3. Department of Medicine, University of Toronto, Toronto, ON, Canada

    Gillian Hawker

  4. Osteoporosis Research Program, Women’s College Hospital, Toronto, ON, Canada

    Gillian Hawker

  5. Department of Physical Therapy, University of Toronto, Toronto, ON, Canada

    Susan Jaglal

  6. Osteoporosis Canada, Toronto, ON, Canada

    Larry Funnell & Ravi Jain

  7. Mobility Program, St. Michael’s Hospital, Toronto, ON, Canada

    Earl Bogoch

  8. Department of Surgery, University of Toronto, Toronto, ON, Canada

    Earl Bogoch

Authors
  1. Joanna E. M. Sale
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  2. Cathy Cameron
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  3. Gillian Hawker
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  4. Susan Jaglal
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  5. Larry Funnell
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  6. Ravi Jain
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  7. Earl Bogoch
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Corresponding author

Correspondence to Joanna E. M. Sale.

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Sale, J.E.M., Cameron, C., Hawker, G. et al. Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture. Arch Orthop Trauma Surg 134, 229–235 (2014). https://doi.org/10.1007/s00402-013-1889-0

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  • DOI: https://doi.org/10.1007/s00402-013-1889-0

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