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Childhood brain tumour information on the Internet in the Chinese language

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Abstract

Background

Internet information, now available in many different languages, can become a major source of information for patients and families in their own mother tongue. Chinese represent one of most frequently spoken language in the world. The aims of this study were to critically appraise the quantity and quality of Internet health information in childhood brain tumour in the Chinese language and to identify sufficient quality websites that can potentially be recommended to Chinese-speaking parents.

Methods

Internet information on six common paediatric brain tumours was searched using six commonly used Chinese search engines. Websites were assessed systematically using two rating tools: DISCERN instrument and Checklist Rating System Instrument.

Results

Out of 946 sites accessed, only 13 assessable Chinese websites, displaying Traditional Chinese characters and providing information on brain tumour, were identified. Only four sites included specific discussion on brain tumours in children. Ten websites failed to provide satisfactory information on brain tumour as rated by DISCERN instrument. Overall only 41% of the 13 specific items relevant to brain tumours were mentioned (Checklist Rating System Instrument).

Conclusion

Only a few satisfactory websites can be recommended to Chinese-speaking families for general information on brain tumour with caution from health care providers that such information may not apply to the child’s individual condition.

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References

  1. Bartels U, Hargrave D, Lau L, Esquembre C, Humpl T, Bouffet E (2003) Analyse pädiatrisch neuro-onkologischer Informationen in deutschsprachigen Internetseiten (Analysis of paediatric neuro-oncological information on the Internet in German language). Klin Padiatr 215:352–357

    Article  PubMed  Google Scholar 

  2. Bichakjian CK, Schwartz JL, Wang TS, Hall JM, Johnson TM, Biermann JS (2002) Melanoma information on the internet: often incomplete—a public health opportunities? J Clin Oncol 20:134–141

    Article  PubMed  Google Scholar 

  3. Biermann JS, Golladay GJ, Greenfield ML, Baker LH (1999) Evaluation of cancer information on the Internet. Cancer 86:381–390

    Article  PubMed  Google Scholar 

  4. Bouffet E, Foreman N (1999) Chemotherapy for intracranial ependymomas. Childs Nerv Syst 15:563–570

    Article  PubMed  Google Scholar 

  5. Bowman KW, Hui EC (2000) Bioethics for clinicians: 20. Chinese bioethics. CMAJ 163:1481–1485

    PubMed  Google Scholar 

  6. Charnock D, Shepperd S, Needham G, Gann R (1999) DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health 53:105–111

    PubMed  Google Scholar 

  7. Elfert H, Anderson JM, Lai M (1991) Parents’ perception of children with chronic illness: a study of immigrant Chinese families. J Pediatr Nurs 6:114–120

    PubMed  Google Scholar 

  8. Freeman CR, Perilongo G (1999) Chemotherapy for brain stem gliomas. Childs Nerv Syst 15:545–553

    Article  PubMed  Google Scholar 

  9. Gajjar A, Kuhl J, Epelman S, Bailey C, Allen J (1999) Chemotherapy of medulloblastoma. Childs Nerv Syst 15:554–562

    Article  PubMed  Google Scholar 

  10. Hargrave D, Bartels U, Lau L, Esquembre C, Bouffet E (2003) Evaluation de la qualité de l’information médicale francophone accessible au public sur Internet: application aux tumeurs cérébrales de l’enfant (Quality of childhood brain tumour information on the Internet in French language). Bull Cancer 90:650–655

    PubMed  Google Scholar 

  11. Hayward R (1999) The present and future management of childhood craniopharyngioma. Childs Nerv Syst 15:764–769

    Article  PubMed  Google Scholar 

  12. Jadad AR, Gagliardi A (1998) Rating health information on the Internet: navigating to knowledge or to Babel? JAMA 270:611–614

    Article  Google Scholar 

  13. Nomura K (2001) Epidemiology of germ cell tumours in Asia of pineal region tumour. J Neurooncol 54:211–217

    Article  PubMed  Google Scholar 

  14. Packer RJ, Bruce H, Cooney K (2000) Intracranial germ cell tumors. Oncologist 5:312–320

    PubMed  Google Scholar 

  15. Reddy AT, Packer RJ (1999) Chemotherapy for low-grade gliomas. Childs Nerv Syst 15:506–513

    Article  PubMed  Google Scholar 

  16. Roberts JM, Copeland KL (2001) Clinical websites are currently dangerous to health. Int J Med Inf 62:181–187

    Article  Google Scholar 

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Correspondence to Eric Bouffet.

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Lau, L., Hargrave, D.R., Bartels, U. et al. Childhood brain tumour information on the Internet in the Chinese language. Childs Nerv Syst 22, 346–351 (2006). https://doi.org/10.1007/s00381-005-1238-x

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  • DOI: https://doi.org/10.1007/s00381-005-1238-x

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