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Standards of care for patients with spondyloarthritis

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Abstract

To define and give priory to standards of care in patients with spondyloarthritis (SpA). A systematic literature review on SpA standards of care and a specific search in relevant and related sources was performed. An expert panel was established who developed the standards of care and graded their priority (high, mild, low, or no priority) following qualitative methodology and Delphi process. An electronic survey was sent to a representative sample of 167 rheumatologists all around the country, who also gave priority to the standards of care (same scale). A descriptive analysis is presented. The systematic literature review retrieved no article specifically related to SpA patients. A total of 38 standards of care were obtained—12 related to structure, 20 to process, and 6 to result. Access to care, treatment, and safety standards of care were given a high priority by most of rheumatologists. Standards not directly connected to daily practice were not given such priority, as standards which included a time framework. The standards generated for the performance evaluation (including patient and professionals satisfaction) were not considered especially important in general. This set of standards of care should help improve the quality of care in SpA patients.

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Correspondence to Estíbaliz Loza.

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José Luis Fernández-Sueiro: In Memoriam.

Appendix: 2e study group

Appendix: 2e study group

José Manuel Martín Santos; José Ángel Cabezas Lefler; Carolina Diez Morrondo; José Luis Alonso Valdivieso; María Álvarez de Buergo; Ruth López González; Manuel Cipriano Martín Martínez; Mario Agudo Bilbao; Senén González Suárez; Tomás Tinture Eguren; Mª Edilia García Fernández; Juan Ignacio Villa Blanco; Laura Losada Ares; Javier de Toro santos; Carlos Fernández López; José Antonio Pinto Tasende; Ángeles Hernández del Río; Julio Vázquez Pérez Coleman; Tomás Ramón Vázquez Rodríguez; Susana Romero Yuste; Bruno Aspe de la Iglesia; Marina Rodríguez López; Jesús Ibáñez Ruan; Balbina Carmen González Álvarez; Luis Fernández Domínguez; Íñigo Hernández Rodríguez; Mª Dolores Miranda García; Montserrat Romero Gómez; Mª José Madrigal Domínguez; Belén Garrido López; Sergio Rodríguez Montero; Julia Uceda Montañés; Raquel Hernández Sánchez; Antonio Ponce Vargas; Sara Manrique Arija; Rosa García Portales; Pablo Manzano Fernández-Amigo; Mª José Pérez Galán; Mª Carmen Ramírez Barberena; Antonio Romero Pérez; Serafín Campos Sánchez; Reyes Martín Walls; José Luis de la Iglesia Salgado; Mª del Mar Ruiz Tudela; Inmaculada Macías Fernández; Rosario Cabeza Rodríguez; Rocío Solís Díaz; Ricardo Sanchez Parera; Rafael Cáliz Cáliz; Antonio García Sanchez; Miguel Ángel Ferrer González; Alfonso Gonzalez Utrilla; Miguel Ángel Doña; Manuel Castaño Sánchez; Deseada Plama Sánchez; Fernando Jose Rodríguez Martínez; Enrique Judez Navarro; Mª Jose Rubira Perez; Ana Climent Albaladejo; Marino Villalón Pla; Antonio Gracias Pérez; Carlos Feced Olmos; Rosa Hortal Alonso; Ana Martínez Cristóbal; Juan José Alegre Sancho; Arantxa Conesa Mateu; Francisco Pérez Torres; Alejandro San Martin Álvarez; Jose Miguel Senabre Gallego; Carlos Santos Ramírez; Raúl Noguera Pons; Mª Paz Martinez Vidal; Francisca Sivera Mascaró; Trino Pina Murcia; Fátima Álvarez; Cristina Luna; Alberto Cantabrana; Juan Carlos Quevedo; Jos′Ángel Hernández; Juan José Bethencourt; Mª Ángeles Gante; Vera Ortiz Santamaria; Asunción Acosta Pereira; Yolanda León Hernández-Rico; Elisabet García Casares; Patricia Moya Alvarado; Carolina Perez Garcia; Pau Lluch Mesquida; Silvia Paredes González-Albo; Josep Pujol Costa; Anna Pamies Corts; Mª José Poveda Elices; Carlos Tomás Roure; Miriam Almirall Bernabe; Delia Taverner Torrent; Joan Calvet Fontova; Julio Ramirez Garcia; Eulalia de Cendra Morera; Patricia Reyner Echevarria; Marta Valls Roc; Joana Rovira; Oriol Codina Guino; Sergio Ordoñez; Mª Bonet Llorach; Sandra Farietta; Meritxell Salles; Cayetano Alegre; Mireia Barcelo; Lidia de Prado; Jose Luis Morrel Hita; Mª Consuelo Diaz-Miguel Perez; Fco Jacier Bachiller Corral; Cristina Hidalgo; Mª Dolores Sanchez Gonzalez; Concepción Morado Quiñoa; Esther Toledano Martinez; Jose Luis Alvarez Vega; Jose Mª Salazar Vallinas; Maria Torresano Andrés; Puerto Moreno Gil; Antonia Ferreira Conejo; Antonio Cardenal Escarcena; Fernando Gamero Ruiz; Ángela Herranz Varela; Miguel Bernard Pineda; Laura Nuño Varela; Javier González Polo; Eva Tomero Muriel; Rebeca Belmonte Gómez; Hilda Godoy Tundidor; Inmaculada de la Torre; Mariía Alcalde; Carmen Barbadillo; Montse Corteguera; Marian Matias; Olga Sanchez; Teresa Gonzalez; Eduardo Loza Cortina; Ricardo Gutierrez Polo; Laura Garrido Courel; Loreto Horcada Rubio; Inma Paniagua Zudaire; Rosario Ibáñez Bosch; Jordi Pons Dolset; Mayte Bosque Peralta; Concha Delgado Beltrán; Carlos Armas Ramírez de Verges; Rosa Roselló Pardo; Chesus Beltrán Audera; Jesús Marzo Gracia; Valvanera Pinillos Aransay; Mª Luz García Vivar; Eva Galíndez Aguirregoikoa; Manuel Flores Torre; Joaquín Belzunegui; Belén Álvarez Ana Ruibal; Javier Arostegui; Isabel Mateo Bernardo; Mercedes Morcillo; Roberto Miguélez; Claudia Urrego Laurín; Manuel Fernández Prada; Eduardo Cuende Quintana; Mª Carmen Ortega de la O.

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Abad, M.Á., Ariza, R.A., Aznar, J.J. et al. Standards of care for patients with spondyloarthritis. Rheumatol Int 34, 165–170 (2014). https://doi.org/10.1007/s00296-013-2934-6

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