Patient characteristics and opinions of health professionals.
| Validation | Sensitivity to Change | Reproducibility | |
|---|---|---|---|
| Population, n | 130 | 53 | 61 |
| Sex, male | 67 (51.5) | 27 (50.9) | 30 (49.2) |
| Age, yrs | 43.5 ± 12.9 | 39.4 ± 12.1 | 45.4 ± 13.4 |
| Family status, living alone (vs living with family) | 23 (19.0) | 13 (26.5) | 9 (16.1) |
| Education level, high school | 69 (53.9) | 30 (57.7) | 31 (51.7) |
| SPS: higher SPS vs lower SPSa | 40 (31.3) | 15 (28.9) | 16 (26.7) |
| Disease duration, yrs, median (IQR) | 8 (3-16) | 5 (2-9) | 11 (4-19) |
| Current treatment | |||
| NSAIDs | 66 (50.8) | 32 (60.4) | 26 (42.6) |
| Analgesics | 55 (42.3) | 29 (54.7) | 22 (36.1) |
| Glucocorticoids | 4 (3.1) | 2 (3.8) | 1 (1.6) |
| csDMARDs | 24 (18.5) | 8 (22.2) | 12 (24.5) |
| Including methotrexate | 10 (7.7) | 2 (3.8) | 6 (9.8) |
| bDMARDs | 80 (61.5) | 25 (55.6) | 43 (84.3) |
| Physical therapy | 63 (51.5) | 27 (50.9) | 27 (44.3) |
| How well informed is your patient about his/her disease? (out of 10) | 6.1 ± 1.8 | 5.6 ± 1.9 | 6.3 ± 1.7 |
| How well informed is your patient about his/her treatment? (out of 10) | 6.2 ± 1.8 | 5.8 ± 2.1 | 6.4 ± 1.5 |
| Patient-identified source of knowledge | |||
| From caregivers | |||
| General practitioner | 57 (43.9) | 20 (37.7) | 28 (45.9) |
| Rheumatologist in private practice | 34 (26.2) | 22 (41.5) | 7 (11.5) |
| Rheumatologist in hospital | 107 (82.3) | 34 (64.2) | 58 (95.1) |
| Therapeutic education sessionsb | 27 (20.8) | 14 (26.4) | 13 (21.3) |
| Nurse | 22 (16.9) | 8 (15.1) | 12 (19.7) |
| Other information sources | |||
| Internet | 75 (57.7) | 37 (69.8) | 32 (52.5) |
| Patient associations | 12 (9.2) | 3 (5.7) | 6 (9.8) |
| Brochures, booklets | 54 (41.5) | 24 (45.3) | 26 (42.6) |
| BASDAI (0-10) | 4.5 ± 2.1 | 4.7 ± 2.0 | 4.3 ± 2.3 |
| AHI (5-20) | 17.1 ± 4.6 | 17.5 ± 4.8 | 16.6 ± 4.4 |
| GSE (10-40) | 28.3 ± 9.4 | 25.8 ± 11.6 | 29.7 ± 7.5 |
| BMQ necessity (5-25) | 19.3 ± 5.1 | 18.2 ± 5.4 | 19.9 ± 5.0 |
| BMQ concerns (5-25) | 14.1 ± 5.4 | 14.7 ± 5.1 | 13.6 ± 5.6 |
Values are n (%) or mean ± SD unless otherwise indicated.
↵a Higher SPS: craftsperson, merchant and company head, corporate, and academic professions. Lower SPS: farmer, employees, and persons without professional activities.
↵b Includes individual and group therapeutic education sessions. AHI: Arthritis Helplessness Index (high score means greater helplessness); BASDAI: Bath Ankylosing Spondylitis Disease Activity Index (high score means higher disease activity); bDMARD: biologic disease-modifying antirheumatic drug; BMQ: Beliefs About Medication Questionnaire (high score means greater necessity or concerns); csDMARD: conventional synthetic disease-modifying antirheumatic drug; GSE: General Self-Efficacy Scale (high score means higher self-efficacy; NSAID: nonsteroidal antiinflammatory drug; SPS: socioprofessional status.