Table 1.

Example of scoring the Patient Generated Index (PGI) based on 1 participant.

Part 1: List Areas Affected by Your Rheumatic Disease	Part 2: Rate Severity of Each Area, 0-6^{^a}		Part 3: Assign a Total of 10 Points Across the Listed Areas^{^b}		PGI Overall Score^{^c}
Sleep	2	×	4/10 (= 0.4)	=	0.8
Pain	3	×	2/10 (= 0.2)	=	0.6
Sexuality	3	×	2/10 (= 0.2)	=	0.6
Economy	4	×	0/10 (= 0.0)	=	0.0
Physical activity	4	×	2/10 (= 0.2)	=	0.8
				=	2.8/6 × 100 = 46.67

PGI overall scores range 0-100, with higher scores indicating better overall quality of life.¹³
↵^aRate severity range from 0 (as bad as it could possibly be) to 6 (as good as it could possibly be).
↵^bMost points are given to areas participants want most to improve.
↵^cPGI calculation formula = [Σ (area score × points assigned/10)]/6 × 100. Calculation of example above = (2 × 0.4) + (3 × 0.2) + (3 × 0.2) + (4 × 0) + (4 × 0.2) = 0.8 +0.6 + 0.6 + 0.0 + 0.8 = 2.8/6 × 100 = 46.67.