Demographics of subjects with AAV in RISE Registry (2015–2017).
| Overall | Northeast | South | Mid-West | West | Unknown | |
|---|---|---|---|---|---|---|
| N | 1462 | 122 | 658 | 470 | 174 | 38 |
| Age, yrs, mean (SD) | 59.8 (15.3) | 60.7 (16.2) | 59.5 (15.4) | 59.9 (15.3) | 59.3 (14.4) | 61.0 (14.9) |
| Female | 864 (59) | 67 (55) | 396 (60) | 283 (60) | 98 (56) | 20 (53) |
| Race | ||||||
| White | 824 (56) | 90 (74) | 359 (55) | 255 (54) | 93 (54) | 27 (71) |
| Black | 44 (3) | 3 (3) | 31 (5) | 9 (2) | 1 (1) | 0 (0) |
| Other/Unspecified | 594 (41) | 29 (24) | 268 (41) | 206 (44) | 80 (46) | 11 (29) |
| Hispanic | 130 (9) | 3 (3) | 90 (14) | 12 (3) | 23 (13) | 2 (5) |
| No. encounters, median (IQR) | 3 (0–9) | 4.5 (1–13) | 4 (0–11) | 2 (0–6) | 4 (1–8) | 4.5 (0–11) |
| New visit | 259 (18) | 18 (15) | 124 (19) | 76 (16) | 33 (19) | 8 (21) |
| Follow-up, days, median (IQR) | 579 (328–715) | 507 (287–729) | 573 (324–713) | 594 (336–714) | 595 (357–720) | 623 (344–779) |
| AAV type | ||||||
| GPA | 1097 (75) | 93 (76) | 505 (77) | 333 (71) | 134 (77) | 32 (84) |
| MPA | 235 (16) | 16 (13) | 101 (15) | 90 (19) | 26 (15) | 2 (5) |
| EGPA | 139 (10) | 13 (11) | 57 (9) | 49 (10) | 16 (9) | 4 (11) |
| ANCA testing | ||||||
| Ever performed | 221 (15) | 12 (10) | 87 (13) | 68 (15) | 53 (31) | 1 (3) |
| Test ever positive | 137 (62) | 6 (50) | 49 (56) | 49 (72) | 32 (60) | 1 (100) |
Values are expressed in n (%) unless otherwise indicated. AAV: ANCA-associated vasculitis; ANCA: antineutrophil cytoplasmic antibody; EGPA: eosinophilic granulomatosis with polyangiitis; GPA: granulomatosis with polyangiitis; MPA: microscopic polyangiitis; RISE: Rheumatology Informatics System for Effectiveness registry.