Total, n = 121 | White, n = 45 | African American, n = 76 | P | |
---|---|---|---|---|
IPC | ||||
Hurried communicationa | 1.3 [1–1.8] | 1 [1–1.5] | 1.3 [1–1.8] | 0.01 |
Difficult wordsa,b | 1 [1–2] | 1 [1–2] | 2 [1–2] | 0.03 |
Discriminationa | 1 [1–1] | 1 [1–1] | 1 [1–1] | 0.2 |
Disrespectful office staffa | 1 [1–1] | 1 [1–1] | 1 [1–1] | 0.9 |
Elicited concernsc | 5 [4.3–5] | 4.8 [4–5] | 5 [4.3–5] | 0.5 |
Explained results, medicationsc | 4.5 [3.8–5] | 4.5 [3.5–5] | 4.8 [4–5] | 0.3 |
Patient-centered decision makingc | 4.5 [3.5–5] | 4.3 [3.5–5] | 4.5 [3.3–5] | 0.9 |
Compassionate, respectfulc | 5 [4.2–5] | 5 [4.2–5] | 5 [4.2–5] | 0.6 |
PROMIS | ||||
General self-efficacyd | 51 [44–65] | 52 [44–65] | 50 [44–59] | 0.6 |
Self-efficacy in managing treatmentsd | 48 [42–56] | 52 [43–61] | 47 [42–54] | 0.1 |
Social functiond | 48 [42–57] | 44 [38–52] | 52 [44–64] | 0.004 |
Physical functiond | 41 [36–49] | 41 [36–49] | 42 [37–49] | 0.6 |
Anxietyd | 52 [40–58] | 51 [40–56] | 52 [40–59] | 0.5 |
Depressiond | 41 [41–54] | 41 [41–54] | 41 [41–55] | 0.7 |
Fatigued, mean (SD) | 56 (11) | 59 (10) | 54 (11) | 0.005 |
Sleep disturbanced | 56 [54–59] | 56 [53–60] | 56 [54–58] | 0.5 |
Pain interferenced | 56 [50–62] | 58 [50–61] | 56 [50–62] | 1.0 |
SLE duration, yrs | 15 [8–21] | 14 [7–18] | 15 [9–22] | 0.3 |
No. SLE medications | 2 [1–3] | 2 [1–2] | 2 [2–3] | 0.003 |
SLE medication complexity | 7 [3–9] | 5 [3–8] | 8 [5–11] | 0.005 |
Prescribed MMF, % | 35 | 18 | 45 | 0.003 |
Prescribed prednisone, % | 43 | 2 | 55 | 0.002 |
SDI | 2 [0–3] | 1 [0–2] | 2 [1–4] | 0.03 |
SLEDAI | 2 [0–5] | 0.5 [0–4] | 2 [0–6] | 0.04 |
SLAQ | 9 [5–14] | 10 [5–14] | 8 [5–13] | 0.4 |
FM symptom severity score, mean (SD) | 3.6 (2.5) | 4.3 (2.3) | 3.3 (2.5) | 0.02 |
Charlson Comorbidity Index | 2 [1–3] | 2 [1–2] | 2 [1–3] | 0.8 |
Values are expressed in median [IQR] unless otherwise indicated. Values in bold are statistically significant. IPC scores range from 1 to 5.
↵aLower score is better.
↵bSubdomains of Hurried communication, as reflected by responses to the question, “How often did doctors use words that were hard to understand?” Score ranges from 1 to 5, with higher scores indicating perceiving providers use more difficult words.
↵cHigher score is better.
↵dPROMIS short forms: 50 is reference population mean, 5 is clinically significant difference; higher scores are better for self-efficacy, social function, and physical function, but lower scores are better for anxiety, depression, fatigue, sleep disturbance, and pain interference. FM: fibromyalgia; IPC: Interpersonal Processes of Care survey; MMF: mycophenolate mofetil; PROMIS: Patient Reported Outcome Measurement Information System; SLAQ: Systemic Lupus Activity Questionnaire; SLE: systemic lupus erythematosus; SLEDAI: Systemic Lupus Erythematosus Disease Activity Index; SDI: Systemic Lupus International Collaborating Clinics (SLICC) Damage Index.