Table 2.

Comparing patient-reported and clinical characteristics between White and African American patients.

Total, n = 121White, n = 45African American, n = 76P
IPC
    Hurried communicationa1.3 [1–1.8]1 [1–1.5]1.3 [1–1.8]0.01
      Difficult wordsa,b1 [1–2]1 [1–2]2 [1–2]0.03
    Discriminationa1 [1–1]1 [1–1]1 [1–1]0.2
    Disrespectful office staffa1 [1–1]1 [1–1]1 [1–1]0.9
    Elicited concernsc5 [4.3–5]4.8 [4–5]5 [4.3–5]0.5
    Explained results, medicationsc4.5 [3.8–5]4.5 [3.5–5]4.8 [4–5]0.3
    Patient-centered decision makingc4.5 [3.5–5]4.3 [3.5–5]4.5 [3.3–5]0.9
    Compassionate, respectfulc5 [4.2–5]5 [4.2–5]5 [4.2–5]0.6
PROMIS
    General self-efficacyd51 [44–65]52 [44–65]50 [44–59]0.6
    Self-efficacy in managing treatmentsd48 [42–56]52 [43–61]47 [42–54]0.1
    Social functiond48 [42–57]44 [38–52]52 [44–64]0.004
    Physical functiond41 [36–49]41 [36–49]42 [37–49]0.6
    Anxietyd52 [40–58]51 [40–56]52 [40–59]0.5
    Depressiond41 [41–54]41 [41–54]41 [41–55]0.7
    Fatigued, mean (SD)56 (11)59 (10)54 (11)0.005
    Sleep disturbanced56 [54–59]56 [53–60]56 [54–58]0.5
    Pain interferenced56 [50–62]58 [50–61]56 [50–62]1.0
SLE duration, yrs15 [8–21]14 [7–18]15 [9–22]0.3
No. SLE medications2 [1–3]2 [1–2]2 [2–3]0.003
SLE medication complexity7 [3–9]5 [3–8]8 [5–11]0.005
Prescribed MMF, %3518450.003
Prescribed prednisone, %432550.002
SDI2 [0–3]1 [0–2]2 [1–4]0.03
SLEDAI2 [0–5]0.5 [0–4]2 [0–6]0.04
SLAQ9 [5–14]10 [5–14]8 [5–13]0.4
FM symptom severity score, mean (SD)3.6 (2.5)4.3 (2.3)3.3 (2.5)0.02
Charlson Comorbidity Index2 [1–3]2 [1–2]2 [1–3]0.8
  • Values are expressed in median [IQR] unless otherwise indicated. Values in bold are statistically significant. IPC scores range from 1 to 5.

  • aLower score is better.

  • bSubdomains of Hurried communication, as reflected by responses to the question, “How often did doctors use words that were hard to understand?” Score ranges from 1 to 5, with higher scores indicating perceiving providers use more difficult words.

  • cHigher score is better.

  • dPROMIS short forms: 50 is reference population mean, 5 is clinically significant difference; higher scores are better for self-efficacy, social function, and physical function, but lower scores are better for anxiety, depression, fatigue, sleep disturbance, and pain interference. FM: fibromyalgia; IPC: Interpersonal Processes of Care survey; MMF: mycophenolate mofetil; PROMIS: Patient Reported Outcome Measurement Information System; SLAQ: Systemic Lupus Activity Questionnaire; SLE: systemic lupus erythematosus; SLEDAI: Systemic Lupus Erythematosus Disease Activity Index; SDI: Systemic Lupus International Collaborating Clinics (SLICC) Damage Index.