Availability of allied health providers to support transition | 48.2 |
Patient not prepared for differences between pediatric and adult healthcare systems | 48.2 |
Availability of primary care to support transition | 41.1 |
Parents having difficulty transferring responsibility to the youth | 39.3 |
Patient/family expectations unrealistic of adult health system | 37.5 |
Communication, coordination, guidelines, and protocols between pediatric and adult systems | 32.1 |
Availability of practice resources/tools | 23.2 |
Lack of knowledge of community supports | 21.4 |
Lack of training in transition care | 19.6 |
Patient knowledge/preparation about their disease and/or skills to self-advocate at physician visits | 19.6 |
Adult rheumatologist’s skills/knowledge | 17.9 |
Inadequate communication of diagnosis, history, and/or treatment outcomes | 16.1 |
Strong bonds existing with pediatric team | 16.1 |
Lack of knowledge about disease course | 14.3 |
Adult rheumatologist availability | 12.5 |