Delphi survey respondent characteristics. Values are n unless otherwise specified.
| Respondent Characteristics | Round 1, n = 190, Response Rate 85% | Round 2, n = 201, Response Rate 84% | Round 3, n = 182, Response Rate 77% |
|---|---|---|---|
| Patient/parent categories | |||
| Patient | 16 | 13 | 12 |
| Parent/caregiver | 55 | 74 | 60 |
| Leader JIA association | 13 | 12 | 11 |
| Other stakeholder categories* | |||
| HCP | 94 | 82 | 80 |
| Pediatric rheumatologist, subset of HCP | 84 | 73 | 71 |
| > 10 yrs’ experience | 76% | 74% | 73% |
| JIA researcher | 47 | 41 | 39 |
| Clinical trials experience | 50 | 48 | 42 |
| FDA/EMA | 4 | 6 | 5 |
| Patient/sample characteristics | |||
| Patient age, yrs, mean | 35 | 31 | 37 |
| Patient age at diagnosis, yrs, mean | 6 | 6 | 6 |
| Polyarticular (child) | 55% | 46% | 47% |
| Oligoarticular (child) | 18% | 22% | 22% |
| Systemic arthritis (child) | 13% | 16% | 12% |
| Enthesitis-related arthritis (child) | 9% | 8% | 12% |
| Psoriatic arthritis (child) | 4% | 8% | 8% |
↵* Categories are nonexclusive. HCP: healthcare provider; JIA: juvenile idiopathic arthritis; FDA: US Food and Drug Administration; EMA: European Medicines Agency.