Table 1.

Summary of survey results. Values are n (%).

QuestionsTotal, n = 100
YesNoNR
Do you think (characteristic listed below) will affect the importance of health impact (pain, quality of life, functional limitations, etc.)?
  Place of residence (high-income, low-income country)84 (84.0)8 (8.0)2 (2.0)
  Place of residence (urban, rural, etc.)83 (83.0)11 (11.0)2 (2.0)
  Occupation (whether a person has a job: employed, out of work, longterm disability)82 (82.0)7 (7.0)11 (11.0)
  Occupation (type of job)78 (78.0)7 (7.0)14 (14.0)
  Culture77 (77.0)6 (6.0)10 (10.0)
  Socioeconomic status71 (71.0)8 (8.0)17 (17.0)
  Education70 (70.0)13 (13.0)16 (16.0)
  Social capital70 (70.0)10 (10.0)18 (18.0)
  Gender/sex63 (63.0)19 (19.0)12 (12.0)
  Ethnicity53 (53.0)29 (29.0)10 (10.0)
  Language49 (49.0)33 (33.0)11 (11.0)
  Religion49 (49.0)30 (30.0)12 (12.0)
  Race39 (39.0)33 (33.0)8 (8.0)
Do you think current or future core outcome measures should be tested in specific diverse patient populations?78 (78.0)5 (5.0)16 (16.0)
Do you think disadvantaged populations [such as those listed above] may benefit from more plain language, inclusive outcome measurement instruments?67 (67.0)8 (8.0)16 (16.0)
Do you think that PROM need to be modified for use among immigrant populations within the country in which the PROM was developed?56 (56.0)21 (21.0)11 (11.0)
In addition to the PROGRESS characteristics (listed above), are there other potentially disadvantaged groups that we need to consider within OMERACT?25 (25.0)39 (39.0)20 (20.0)
  • NR: no response; numbers do not add to 100% because some respondents recorded comments other than yes or no (e.g., do not know); PROM: patient-reported outcome measures; PROGRESS: Place of residence, Race/ethnicity/culture/language, Occupation, Gender/sex, Religion, Education, Socioeconomic status, and Social Capital; OMERACT: Outcome Measures in Rheumatology.