Themes and domains/subdomains retrieved from the qualitative interviews.
| Symptoms | Effect on Function and Activities | Psychological Effect | Social Effect |
|---|---|---|---|
| Difficulty sleeping | Difficulty in concentrating | Anger | Feeling inadequate |
| Fatigue | Difficulty in eating and drinking | Anxiety | Feeling judged or pitied by others |
| Genital ulcers | Difficulty in taking care of children | Depression | Feeling restricted |
| Headache | Difficulty in talking | Fear | Feeling that others underestimate the severity of their symptoms |
| Lethargy | Difficulty in walking | Lack of self-confidence | Need for support |
| Oral ulcers | Difficulty with household tasks | Stress | Problems in relationship with partner |
| Pain | Effect on family | Reduced strength | Reduced social activities and participation |
| Swelling | Effect on personal independence | Suicidal ideation | |
| Visual impairment | Impaired vision, inability to work, reduced quality of life |