Table 2.

Individual group shortlists of important outcomes from round 2 of the nominal group technique.

Group 1Group 2Group 3Group 4
WorkTreatments stop things deterioratingPainPain – constant, dull
Leisure activitiesNot to be in constant painFatigueMobility
Daily activitiesTo maintain independenceStiffnessFatigue – emotional, mental, physical
Quality of life – well-beingFeeling less isolatedSleepQuality of life
Medicines’ side effects/interactions/immunitySide effects of treatmentEmotions/anxiety/moodImpact and ability to work
Feel better after treatmentLongterm effects of treatmentMobility/walkVariability and control
Physical fitnessReduce pain in my musclesDrug side effects/interactionsBeing able to exercise more
Touch and feeling in fingersFrustratedLess variabilitySide effects and lowered immunity
Fatigue/stamina/mental fatigueVariations in body temperatureBetter immunityGrip, strength, dexterity
MobilityEnable me to be/return to normalSkinConfidence, mood, emotions, depression
Pain in back/jointsBe able to remain in workSelf-confidenceWeight
Mood/anger/frustrationQuality/continuity of clinicianWorkJoint damage
StiffnessTreatments that do not interact with other medicationsSlow progressionPain – constant, dull
Independence
Self-management easier
Group 5Group 6Group 7
Treatments stop things deterioratingSide effects/anxiety about symptomsQuality of life
Not to be in constant painEveryday activitiesLoss of sense of touch/feeling
To maintain independencePainSkin
Feeling less isolatedVariabilitySleep
Side effects of treatmentInflammationPain
Longterm effects of treatmentFatigue (physical and mental)Frustration
Reduce pain in my musclesBurden of treatment (especially blood tests)Maintain independence
FrustratedPhysical fitness and not gaining weightLowered immunity
Variations in body temperatureEffect on workMobility/walk about more easily
Enable me to be/return to normalGetting back to normalFlare (and anxiety about flare)
Be able to remain in workKeeping up with peersStress
Quality/continuity of clinicianMobilityFatigue – physical, mental (concentration), emotional
Treatments that do not interact with other medicationsClearer skin (to avoid embarrassment because of other people)