PROMIS CAT and legacy PRO instrument score distributions (n = 204).
| Variables | Mean | SD | Median | 25th Percentile | 75th Percentile | Min | Percent Min Score | Max | Percent Max Score |
|---|---|---|---|---|---|---|---|---|---|
| PROMIS CAT1 | |||||||||
| Physical function | 42.6 | 8.4 | 41.9 | 37.7 | 48.1 | 24.7 | 0.5 | 73.3 | 1.0 |
| Mobility | 42.7 | 8.4 | 41.7 | 36.8 | 47.9 | 22.9 | 0.5 | 60.0 | 9.8 |
| Pain interference | 57.1 | 10.2 | 58.2 | 52.2 | 63.6 | 38.7 | 15.2 | 80.1 | 0.5 |
| Pain behavior | 56.0 | 9.3 | 58.5 | 53.6 | 62.2 | 35.3 | 12.3 | 73.8 | 0.5 |
| Fatigue | 58.3 | 9.5 | 59.1 | 51.8 | 64.0 | 24.3 | 0.5 | 82.9 | 0.5 |
| Anger | 53.9 | 11.2 | 54.6 | 47.4 | 61.4 | 28.9 | 3.4 | 85.2 | 0.5 |
| Anxiety | 55.8 | 9.4 | 57.7 | 51.1 | 62.0 | 32.9 | 2.5 | 84.8 | 0.5 |
| Depression | 53.0 | 10.5 | 54.3 | 45.6 | 60.9 | 34.2 | 12.8 | 78.1 | 1.0 |
| Ability to participate in social roles | 46.8 | 9.2 | 45.6 | 41.7 | 51.2 | 21.5 | 0.5 | 67.5 | 6.9 |
| Satisfaction with social roles | 45.9 | 9.9 | 45.8 | 40.0 | 52.3 | 22.0 | 1.5 | 68.7 | 3.9 |
| Sleep disturbance | 56.6 | 10.7 | 56.5 | 51.8 | 63.0 | 26.3 | 2.0 | 83.8 | 1.5 |
| Sleep-related impairment | 57.7 | 10.4 | 59.2 | 51.9 | 64.3 | 36.2 | 1.5 | 83.1 | 0.5 |
| Applied cognition–abilities | 45.8 | 8.9 | 43.5 | 39.5 | 50.2 | 26.2 | 0.5 | 67.7 | 5.9 |
| Applied cognition–concerns | 39.0 | 11.2 | 54.6 | 35.1 | 44.9 | 14.5 | 8.8 | 69.2 | 1.0 |
| SF-362 | |||||||||
| Physical function | 57.5 | 28.7 | 60.0 | 35.0 | 85.0 | 0.0 | 2.0 | 100.0 | 8.0 |
| Role physical | 35.6 | 41.5 | 25.0 | 0.0 | 75.0 | 0.0 | 49.0 | 100.0 | 23.0 |
| Bodily pain | 55.7 | 26.5 | 55.0 | 35.0 | 78.0 | 0.0 | 2.9 | 100.0 | 28.8 |
| Vitality | 43.2 | 21.1 | 45.0 | 25.0 | 55.0 | 0.0 | 1.0 | 100.0 | 0.5 |
| Mental health | 65.7 | 20.1 | 68.0 | 52.0 | 80.0 | 4.0 | 0.5 | 100.0 | 3.0 |
| Role emotional | 50.1 | 43.2 | 66.7 | 0.0 | 100.0 | 0.0 | 35.3 | 100.0 | 35.3 |
| Social function | 56.9 | 26.5 | 56.3 | 37.5 | 75.0 | 0.0 | 4.9 | 100.0 | 11.8 |
| Global health perceptions | 41.4 | 21.1 | 40.0 | 27.5 | 55.0 | 0.0 | 2.0 | 100.0 | 1.5 |
| PCS | 36.7 | 11.5 | 35.4 | 28.0 | 47.0 | 8.0 | 0.5 | 61.0 | 0.5 |
| MCS | 43.3 | 11.0 | 45.3 | 34.9 | 52.0 | 16.5 | 0.5 | 64.8 | 0.5 |
| LupusQoL3 | |||||||||
| Physical health | 60.8 | 26.8 | 59.4 | 40.6 | 82.8 | 0.0 | 1.0 | 100.0 | 7.8 |
| Pain | 57.9 | 29.5 | 58.3 | 33.3 | 83.3 | 0.0 | 4.4 | 100.0 | 15.2 |
| Fatigue* | 53.2 | 27.2 | 56.3 | 31.3 | 75.0 | 0.0 | 3.0 | 100.0 | 5.9 |
| Emotional health | 71.5 | 25.2 | 79.2 | 58.3 | 91.7 | 0.0 | 0.5 | 100.0 | 12.7 |
| Planning | 65.4 | 29.4 | 75.0 | 50.0 | 91.7 | 0.0 | 3.9 | 100.0 | 18.6 |
| Burden to others | 53.1 | 31.7 | 50.0 | 33.3 | 75.0 | 0.0 | 10.3 | 100.0 | 12.3 |
| Body image** | 67.0 | 28.6 | 75.0 | 50.0 | 89.6 | 0.0 | 3.3 | 100.0 | 20.0 |
| Intimate relationships | 67.1 | 32.9 | 75.0 | 50.0 | 100.0 | 0.0 | 8.3 | 100.0 | 31.9 |
↵1 PROMIS CAT are scored by T score from 0 to 100 (higher signifies more of the measured trait), with a score of 50 corresponding to the general population mean.
↵2 SF-36 subscales are scored from 0 to 100 (higher signifies better health-related quality of life). For the PCS and MCS, a score of 50 is equivalent to the general population mean.
↵3 LupusQoL domains are scored from 0 to 100 (higher signifies better health-related quality of life).
↵* n = 203 because of missing data.
↵** n = 180, remaining participants replied “Not Applicable.” PROMIS: Patient Reported Outcomes Measurement Information System; CAT: computerized adaptive tests; PRO: patient-reported outcome; min: minimum; max: maximum; SF-36: Medical Outcomes Study Short Form-36; PCS: physical component summary; MCS: mental component summary.