Table 1.

Participant characteristics (n = 26). Values are n (%).

CharacteristicsValues
Male2 (8)
Female24 (92)
Age, yrs
  14–1815 (58)
  19–3011 (42)
Disease duration, yrs
  < 310 (38)
  4–66 (23)
  7–97 (27)
  10–123 (12)
Ethnicity
  Asian16 (62)
  White6 (23)
  Other4 (15)
Clinical manifestations*
  Arthritis17 (65)
  Skin lesions11 (42)
  Hematological disease9 (35)
  Kidney disease9 (35)
  Neurological SLE4 (15)
  Serositis4 (15)
Education/employment status
  Student20 (77)
  Full-time employment3 (12)
  Part-time employment1 (4)
  Unemployed2 (8)
Language(s) spoken at home
  English15 (58)
  • * Some participants reported more than 1 clinical manifestation.

  • Neurological SLE could include self-reported manifestations such as seizures, acute confusional state, optic neuritis, movement disorders, myelitis, psychosis, and peripheral nephropathy. SLE: systemic lupus erythematosus.