Table 2.

Overview of quotes from 9 PRP before, during, and after the GRAPPA 2015 annual meeting.

Before:
  • “It is important to show that we have a perspective to share, that we’re not just grease for their research grant.

  • “Do we know what the physicians want from us? Why they brought us in as a group?”

During:
  • “Moderators in the breakout sessions were great. They really created opportunities for patients to speak up.”

  • “The attitude of the researchers was so much different compared to two years ago.”

  • “I was surprised that some of the researchers still remembered me from last year.”

After:
  • “I was able to meet many more individuals in the various fields that do have something to say and are trying to ascertain the cures of illness people face in their everyday life.”

  • “There was an increase in patient interaction by the doctors and researchers with a view to better understand what patients say and why.”

  • GRAPPA: Group for Research and Assessment of Psoriasis and Psoriatic Arthritis; PRP: patient research partners.