Sociodemographic and disease variables for patients with SSc from the UCLA Scleroderma Quality of Life Study (n = 207). Values are mean (SD) unless otherwise specified.
| Variable | Value |
|---|---|
| Demographic variables | |
| Age, yrs | 54.1 (15.4) |
| White, n (%) | 148 (71.5) |
| Highest level of education, n (%) | |
| Some college or higher | 169 (81.6) |
| Annual income, n (%) | |
| ≥ US$75,000 | 71 (34.3) |
| Female, n (%) | 172 (83.1) |
| Married, n (%) | 118 (57.0) |
| Medical variables | |
| Time since diagnosis of SSc, yrs | 7.57 (7.9) |
| Disease type, n (%) | |
| Limited SSc | 104 (50.2) |
| Diffuse SSc | 83 (40.1) |
| Sine SSc | 4 (1.9) |
| Overlap | 9 (4.3) |
| Missing | 7 (3.4) |
| mRSS score | 8.70 (8.5) [max = 51] |
| Predicted FVC, % | 78.98 (21.76) |
| Renal crisis, n (%) | 10 (4.8) |
| Self-report questionnaire scores | |
| SWAP | 32.6 (20.3) [max = 84] |
| Brief-SWAP | 16.3 (9.6) [max = 36] |
| CES-D | 8.3 (5.8) [max = 30] |
| SF-36 MCS | 48.8 (12.2) [max = 100] |
| SF-36 PCS | 38.7 (10.0) [max = 100] |
| HAQ-DI | 0.8 (0.7) [max = 3] |
SSc: systemic sclerosis; UCLA: University of California, Los Angeles; mRSS: Modified Rodnan skin score; FVC: forced vital capacity; SWAP: Satisfaction with Appearance Scale; Brief-SWAP: Brief-Satisfaction with Appearance Scale; CES-D: Center for Epidemiologic Studies Depression Scale-Short Form; SF-36: Medical Outcomes Study Short Form-36; MCS: mental component summary; PCS: physical component summary; HAQ-DI: Health Assessment Questionnaire-Disability Index.