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Promote the importance of PRP involvement, not only among researchers but also among patient organizations and research funders -
Have an administrator who works directly with PRP to address logistics such as providing information and literature, maintenance of a database of the GRAPPA PRP members, and answering questions -
Stimulate sponsors to provide funds for PRP involvement -
Promote different types of involvement of patients to guarantee the representativeness of the study -
Establish a repository of best practices and other patient relevant documents on the GRAPPA Website -
Provide support and education (including medical and scientific terminology) -
Develop a publication supporting mandatory patient participation for outcomes research and to clarify the position of PRP regarding anonymity (privacy), financial issues (reimbursement of expenses, compensation) and legal issues (compliance with regulations) -
Create an environment in which PRP feel themselves to be equal partners with other GRAPPA members
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