Table 2.

Characteristics of study participants.

Study SessionParticipants
Youth with juvenile idiopathic arthritis (Vancouver)9 patients (7 females).
16 to 23 yrs old.
Diagnosed with JIA 2 to 12 yrs earlier.
Two had systemic arthritis, 2 enthesitis-related arthritis, 2 polyarthritis, and 1 each had oligoarthritis, psoriatic arthritis, or undifferentiated arthritis.
Experienced English-speaking parents (Ottawa)10 parents (5 females, 2 couples).
Their children were 6 to 15 yrs old and had been diagnosed with JIA from 9 mos to 14 yrs earlier.
Four had oligoarthritis, and 1 each had enthesitis–related arthritis, psoriatic arthritis, polyarthritis, or undifferentiated arthritis.
Two parents and the spouse of a third parent had arthritis themselves.
Experienced French-speaking parents (Ottawa)5 parents (3 females, 1 couple).
Their children were 4 to 11 yrs old and had been diagnosed 2 to 5 yrs earlier.
All 4 children had oligoarthritis.
Novice English-speaking parents (Vancouver)8 parents (5 females, 1 couple).
Their children were 2 to 16 yrs old and had been diagnosed 2 to 6 mos earlier.
Two children had oligoarthritis, 2 had undifferentiated arthritis, and 1 each had systemic arthritis, enthesitis–related arthritis, or psoriatic arthritis.
Pediatric rheumatologists (Victoria)8 physicians (6 female).
During a national professional meeting.
At least 10 yrs of experience caring for children with arthritis.
Practicing in 5 Canadian provinces.
Allied health professionals (Victoria)9 professionals (all female).
During a national professional meeting.
At least 5 yrs of experience caring for children with arthritis.
It included 5 nurses, 1 social worker, 1 occupational therapist, 1 physiotherapist, and 1 research associate occupational therapist.
Practicing in 3 Canadian provinces.
  • JIA: juvenile idiopathic arthritis.