Domains ratified during OMERACT 11 proceedings. Forging consensus between patients and physicians with special considerations.
| Domains from Combined Investigations | Special Considerations |
|---|---|
| Dyspnea | Unexpected language and contextual factors |
| Consider need for disease-specific instrument development | |
| Cough | Pervasive effect on dyspnea and HRQOL |
| Core set inclusion received 100% endorsement | |
| Consider need for disease-specific instrument development | |
| Health-related quality of life (HRQOL; also captures patient global assessment) | Consider need for disease-specific instrument development |
| HRQOL is affected by uncertainty surrounding disease outcome | |
| HRQOL may be affected by physician-patient communication | |
| Lung physiology/function | Important to patients and physicians |
| Patients are anxious about performance-related results (re: poor result of spirometry because of “effort” or a “bad day”) | |
| Lung imaging | Patients and physicians care about this domain |
| Survival | Important to both groups |
| Patients want to communicate about prognosis and handling episodic exacerbations | |
| Medications | Important to both groups |
| Incremental increase/decrease may be useful as a disease activity marker but depends on targeted therapy |