Descriptive scores of the LupusPRO (patient-reported outcome) domains in Canadian patients with systemic lupus erythematosus (SLE).
| LupusPRO Domain | Median (IQR) | Floor Effect (% min score of 0) | Ceiling Effect (% max score of 100) | Missing Responses (%) |
|---|---|---|---|---|
| SLE symptoms | 83.3 (33.3) | 0 | 29 | 2.4 |
| Cognition | 75.0 (50.0) | 0.8 | 32.5 | 0 |
| Lupus medications | 100.0 (25.0) | 1.6 | 54.5 | 0.8 |
| Physical health | 95.0 (15.0) | 0 | 47.2 | 0 |
| Pain-vitality | 80.0 (40.0) | 0 | 21.1 | 0.8 |
| Body image | 90.0 (30.0) | 0 | 39.8 | 0.8 |
| Emotional health | 79.2 (29.2) | 0.8 | 15.4 | 3.3 |
| Procreation | 100.0 (0.0) | 0.8 | 75.6 | 0.8 |
| Desires-goals | 87.5 (37.5) | 0.8 | 32.5 | 0 |
| Social support | 75.0 (62.5) | 14.6 | 27.6 | 0 |
| Coping | 66.7 (33.3) | 1.6 | 14.6 | 1.6 |
| Satisfaction with medical care | 75.0 (75.0) | 22 | 25.2 | 0.8 |
IQR: interquartile range; min: minimum; max: maximum.