Table 3.

Frequency of individual responses identified by the PGI and mapped to PROMIS framework categories.

PROMIS General Comp.n (%)PROMIS Subcomp.CountPercentage of General Comp.Percentage of Overall ResponsesPROMIS Domain or SubdomainCountPercentage of Subcomp.*Percentage of General Comp.Percentage of Overall Responses*
Physical health71 (27.5)Physical function5374.620.5Activities of daily living1834.025.47.0
Physical activity1630.222.56.2
Sexual function611.38.52.3
Upper extremity611.38.52.3
Mobility59.47.01.9
Sleep function23.82.80.8
Physical symptoms1724.06.6Fatigue/energy1164.715.54.3
GI symptoms211.82.80.8
Pain211.82.80.8
Symptoms211.82.80.8
Physical health11.40.4Physical health1100.01.40.4
Mental health49 (19.0)Positive affect2449.09.3Subjective well-being1458.328.65.4
Psychosocial illness effect (positive)1041.720.43.9
Negative affect1122.44.3Psychosocial illness effect (negative)11100.022.44.3
Cognition1428.65.4Self-efficacy14100.028.65.4
Social health138 (53.5)Social function7655.129.5Ability to participate/satisfaction with participation76100.055.129.5
Social relationships6244.924.0Social relationships63100.044.924.0
  • Total n = 258 individual responses. Each response was categorized into one of the PROMIS subdomains.

  • * Some cells total 100.1% because of rounding. PGI: Patient-generated Index; PROMIS: Patient-reported Outcomes Measurement Information System; comp.: component; subcomp.: subcomponent.