LupusQoL scores in patients scoring at extremes of the SF-6D domains with significant floor or ceiling effects (5-year assessment). LupusQoL scores are rounded to the nearest whole number.
| Floor Effect | Ceiling Effect | |||||||
|---|---|---|---|---|---|---|---|---|
| Vitality, n = 36 | Role Limitation, n = 42 | Role Limitation, n = 32 | Mental Health, n = 22 | |||||
| Median (IQR) | Min, Max | Median (IQR) | Min, Max | Median (IQR) | Min, Max | Median (IQR) | Min, Max | |
| LupusQoL domain | ||||||||
| Physical health | 36 (17, 63) | 0, 84 | 44 (25, 59) | 7, 84 | 83 (78, 94) | 50, 100 | 69 (38, 86) | 16, 100 |
| Pain | 42 (25, 67) | 0, 83 | 50 (25, 67) | 0, 83 | 92 (83, 100) | 33, 100 | 75 (50, 100) | 25, 100 |
| Planning | 46 (21, 67) | 0, 100 | 58 (33, 75) | 0, 100 | 100 (83, 100) | 17, 100 | 83 (50, 100) | 8, 100 |
| Intimate relationships | 19 (0, 63) | 0, 100 | 13 (0, 50) | 0, 100 | 75 (50, 100) | 0, 100 | 75 (50, 88) | 0, 100 |
| Burden to others | 50 (25, 75) | 0, 100 | 50 (17, 75) | 0, 100 | 83 (75, 92) | 50, 100 | 75 (58, 83) | 8, 100 |
| Emotional health | 65 (48, 79) | 0, 92 | 67 (50, 75) | 0, 92 | 92 (83, 100) | 63, 100 | 92 (88, 100) | 71, 100 |
| Body image | 40 (20, 55) | 0, 85 | 45 (30, 60) | 0, 95 | 58 (35, 92) | 15, 100 | 60 (40, 80) | 20, 100 |
| Fatigue | 28 (16, 41) | 0, 63 | 38 (19, 50) | 0, 81 | 78 (69, 84) | 19, 100 | 72 (44, 81) | 13, 100 |
IQR: interquartile range.