Assessment of morning stiffness, joint involvement, disease course from previous visit, disease status, and satisfaction with illness outcome in the questionnaire completed by the parents at study entry and in the first questionnaire completed simultaneously by parents and children. Values are n (%).
| Parent-Only Questionnaires, n = 618 | Paired Child-Parent Questionnaires, n = 332 | |||||
|---|---|---|---|---|---|---|
| Children | Parents | |||||
| N | N | N | ||||
| Patients with morning stiffness | 606 | 232 (38.3) | 327 | 100 (30.6) | 327 | 97 (29.7) |
| Patients with involvement of ≥ 1 joint | 618 | 364 (58.9) | 332 | 164 (49.4) | 332 | 169 (50.9) |
| Shoulder | 618 | 15 (2.4) | 332 | 12 (3.6) | 332 | 8 (2.4) |
| Elbow | 618 | 39 (6.3) | 332 | 15 (4.5) | 332 | 21 (6.3) |
| Wrist | 618 | 82 (13.3) | 332 | 38 (11.4) | 332 | 38 (11.4) |
| Fingers | 618 | 104 (16.8) | 332 | 38 (11.4) | 332 | 39 (11.7) |
| Hip | 618 | 20 (3.2) | 332 | 13 (3.9) | 332 | 13 (3.9) |
| Knee | 618 | 210 (34.0) | 332 | 86 (25.9) | 332 | 90 (27.1) |
| Ankle | 618 | 151 (24.4) | 332 | 62 (18.7) | 332 | 65 (19.6) |
| Toes | 618 | 49 (7.9) | 332 | 16 (4.8) | 332 | 19 (5.7) |
| Cervical spine | 618 | 22 (3.6) | 332 | 15 (4.5) | 332 | 16 (4.8) |
| Lumbar spine | 618 | 7 (1.1) | 332 | 2 (0.6) | 332 | 3 (0.9) |
| Patients judged in remission | 601 | 266 (44.3) | 321 | 180 (56.1) | 324 | 168 (52.3) |
| In persistent activity | 601 | 184 (30.6) | 321 | 71 (22.1) | 324 | 72 (22.4) |
| In disease flare | 601 | 151 (25.1) | 321 | 70 (21.8) | 324 | 84 (26.2) |
| As much improved* | 401 | 144 (35.9) | 160 | 74 (46.3) | 166 | 64 (38.6) |
| As slightly improved* | 401 | 50 (12.5) | 160 | 22 (13.8) | 166 | 21 (12.7) |
| As stable* | 401 | 134 (33.4) | 160 | 43 (26.9) | 166 | 55 (33.1) |
| As slightly worsened* | 401 | 63 (15.7) | 160 | 19 (11.9) | 166 | 22 (13.3) |
| As much worsened* | 401 | 10 (2.5) | 160 | 2 (1.3) | 166 | 4 (2.4) |
↵* Assessed at second study visit.