Frequency of missing data in parent and child-reported questionnaires. Values are n (%).
| Child Questionnaires | |||||
|---|---|---|---|---|---|
| Feature | Parent-Only Questionnaires, n = 618 | Total, n = 332 | < 10 yrs, n = 92 | 10–15 yrs, n = 159 | > 15 yrs, n = 81 |
| JAFS total score | 2 (0.3) | 2 (0.6) | 1 (1.1) | 0 (–) | 1 (1.2) |
| PRQL total score | 38 (6.1) | 2 (0.6) | 1 (1.1) | 1 (0.6) | 0 (–) |
| PRQL PhH score | 35 (5.7) | 1 (0.3) | 1 (1.1) | 0 (–) | 0 (–) |
| PRQL PsH score | 38 (6.1) | 2 (0.6) | 1 (1.1) | 1 (0.6) | 0 (–) |
| VAS well-being | 17 (2.8) | 4 (1.2) | 2 (2.2) | 2 (1.3) | 0 (–) |
| VAS pain | 25 (4.0) | 6 (1.8) | 4 (4.3) | 2 (1.3) | 0 (–) |
| VAS disease activity | 28 (4.5) | 14 (4.2) | 5 (5.4) | 6 (3.8) | 3 (3.7) |
| Disease course | 34 (5.5) | 13 (3.9) | 5 (5.4) | 6 (3.8) | 2 (2.5) |
| Morning stiffness | 12 (1.9) | 5 (1.5) | 4 (4.3) | 1 (0.6) | 0 (–) |
| Disease status | 17 (2.8) | 11 (3.3) | 4 (4.3) | 4 (2.5) | 3 (3.7) |
| Satisfaction with illness outcome | 34 (5.5) | 7 (2.1) | 4 (4.3) | 3 (1.9) | 0 (–) |
JAFS: Juvenile Arthritis Functionality Scale; PRQL: Pediatric Rheumatology Quality of Life scale; PhH: physical health; PsH: psychosocial health; VAS: visual analog scale.