Table 1.

A research agenda for investigating the use of life impact measures.

  1. Identify the domains within life impact measures (LIM) relevant to:

    1. Different rheumatic conditions

    2. The stage of the disease

    3. The focus of different interventions

    4. A variety of intentions for interventions

    5. The time scale of the investigation

  2. Identify measurement instruments within these domains that are valid for use in rheumatic conditions

  3. Derive LIM core sets for situations in point 1, using valid instruments

  4. This model is tentative and could change as the research agenda progresses

  5. A working group and open forum will carry this forward, with a view to reporting back at a future OMERACT Patient Perspective Workshop