Table 1.

Baseline characteristics of patients with systemic sclerosis enrolled in the Canadian Scleroderma Research Group Registry (N = 416).

Characteristic% or mean (SD)
Women, %86.3
Mean age, yrs56.0 (12.8)
Education (more than high school), %45.2
Mean disease duration, yrs*10.5 (8.3)
Patients with diffuse skin involvement, %35.8
Modified Rodnan skin scores (range 0–51)10.6 (10.0)
Fingertip to palm distance, centimeters1.1 (1.8)
No. of fingertip ulcers1.3 (2.3)
Shortness of breath (range 0–10)2.1 (2.6)
No. of swollen joints0.9 (2.9)
No. of tender joints1.8 (4.4)
No. of gastrointestinal symptoms (range 0–14)3.9 (3.0)
No. of tender points of fibromyalgia (range 0–18)3.0 (5.0)
SF-36 domains**
  Physical functioning36.9 (11.9)
  Social functioning44.2 (11.4)
  Role physical40.6 (12.0)
  Role emotional44.8 (12.7)
  Mental health48.4 (10.6)
  Vitality46.1 (10.6)
  Bodily pain43.2 (9.4)
  General health38.9 (10.9)
SF-36 Physical Component Summary score37.5 (11.2)
  • * Since onset of first non-Raynaud’s manifestation of SSc.

  • ** Lower scores represent worse and higher scores, better HRQOL.