Table 2.

Concepts not covered or no agreement on whether they were covered or not specified.

ConceptBest Option of SpecificationDiscussion
The change in my body posturenc-s, ndChange in body posture is the result of changes in different parts of joints and bones (vertebral column and possibly hips and knees)
Delay in diagnosis had an important influence on my lifenc-ePoints to health service delivery and medical knowledge and its implementation across professionals
Worrying about hereditary aspectsnc-a&p“Worry” refers to an emotional function (b 152) and the total concept to d760: family relationships (creating and maintaining kinship relations)
Losing time because of diseasenc-a&pRelates to chapter d2: general tasks and demands
Reduce the speed of activitiesnc-b, nd-a&p, nc-pfRelates to energy (b130), to chapter for general tasks and demands, but also the coping strategy (personal factor)
I need to take rest during the daync-b; nc-pfRelates to energy level (b130) but also to a coping strategy (personal factor)
Resting provides new energync-a&p; nc-pfRelates to energy level but also to a coping strategy (formulated in a positive way)
Acquiring information is importantnc-pf; nc-eRelates most closely to a coping strategy (personal factor). Relates also to health services (chapter e5)
Providing information to others is importantnc-pf; nc-e; nc-a&pRelates most closely to a coping strategy (personal factor). Relates also to health services (Chapter e5) and relationships (Chapter d7)
Try to hide my disease from othersnc-pf; nc-a&pRelates most closely to a coping strategy (personal factor). Points also to relationships (Chapter d7)
Exercising is importantnc-pf; nc-a&pRelates most closely to a coping strategy (personal factor). Points also to health services (e580)
AS forces me to have a healthy lifestylenc-pf; nc-eRelates most closely to a coping strategy (personal factor). Points also to health services (e580)
Feel that one misses a lotnc-b; ncRelates to emotional function (b152). Also points to several other concepts (energy, participation, etc.)
  • nc-s: not covered, structural factor; nc-e: not covered, environmental factor; nc-b: not covered, body function; nc-a&p: not covered, activity and participation, nc-pf: not covered: personal factor; nd: not defined.