Proposed agenda for action
| Explore how patient knowledge and understanding of measures and their meaning might alter the way questionnaires are completed |
| Evaluate and recommend patient partner involvement |
| Make available a list of content and methodology experts |
| Develop a statement of broad principles for development, in particular with reference to the ‘Truth’ section of the OMERACT Filter |
| Compare the techniques through research: |
| What is the best approach and when should each approach be used? |
| What biases are inherent in the available techniques? |
| What is the cost of each approach? |
| Compile a list of pros and cons of different methods for the OMERACT web site |
| Evaluate ways patient partners contribute to different methods and make specific recommendations |
| Compile a compendium of PRO instruments |
| Consider providing support for participants engaged in these developments across OMERACT, and advice to help researchers in the field to choose their instruments |
| Explore the literature for gaps in instruments currently available to evaluate recognized domains |
| Undertake rigorous instrument development to match identified gaps |