<?xml version='1.0' encoding='UTF-8'?><xml><records><record><source-app name="HighWire" version="7.x">Drupal-HighWire</source-app><ref-type name="Journal Article">17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Tani, Chiara</style></author><author><style face="normal" font="default" size="100%">Zucchi, Dina</style></author><author><style face="normal" font="default" size="100%">Bellis, Elisa</style></author><author><style face="normal" font="default" size="100%">Birru Talabi, Mehret</style></author><author><style face="normal" font="default" size="100%">Frise, Charlotte</style></author><author><style face="normal" font="default" size="100%">de Jesús, Guilherme Ramires</style></author><author><style face="normal" font="default" size="100%">Koksvik, Hege Svean</style></author><author><style face="normal" font="default" size="100%">Lledó, Gema Maria</style></author><author><style face="normal" font="default" size="100%">Mekinian, Arsène</style></author><author><style face="normal" font="default" size="100%">Marinello, Diana</style></author><author><style face="normal" font="default" size="100%">Palla, Ilaria</style></author><author><style face="normal" font="default" size="100%">Mehta, Puja</style></author><author><style face="normal" font="default" size="100%">Comet, Luis Sáez</style></author><author><style face="normal" font="default" size="100%">Shaimaa, Shoela</style></author><author><style face="normal" font="default" size="100%">Smeele, Hieronymus T.W.</style></author><author><style face="normal" font="default" size="100%">Talarico, Rosaria</style></author><author><style face="normal" font="default" size="100%">Brucato, Antonio</style></author><author><style face="normal" font="default" size="100%">Khamashta, Munther</style></author><author><style face="normal" font="default" size="100%">Shoenfeld, Yehuda</style></author><author><style face="normal" font="default" size="100%">Tincani, Angela</style></author><author><style face="normal" font="default" size="100%">Mosca, Marta</style></author></authors><secondary-authors></secondary-authors></contributors><titles><title><style face="normal" font="default" size="100%">Patient Care Pathways for Pregnancy in Rare and Complex Rheumatic Diseases: Results From an International Survey</style></title><secondary-title><style face="normal" font="default" size="100%">The Journal of Rheumatology</style></secondary-title></titles><dates><year><style  face="normal" font="default" size="100%">2023</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2023-07-01 00:00:00</style></date></pub-dates></dates><pages><style  face="normal" font="default" size="100%">934-938</style></pages><doi><style  face="normal" font="default" size="100%">10.3899/jrheum.220773</style></doi><volume><style face="normal" font="default" size="100%">50</style></volume><issue><style face="normal" font="default" size="100%">7</style></issue><abstract><style  face="normal" font="default" size="100%">Objective To map existing organizational care pathways in clinical centers of expertise that care for pregnant women affected by rare and complex connective tissue diseases (rcCTDs).Methods An international working group composed of experts in the field of pregnancy in rcCTDs co-designed a survey focused on organizational aspects related to the patient’s pathway before, during, and after pregnancy. The survey was distributed to subject experts through referral sampling.Results Answers were collected from 69 centers in 21 countries. Patients with systemic lupus erythematosus and/or antiphospholipid syndrome were followed by more than 90% of centers, whereas those with disorders such as IgG4-related diseases were rarely covered. In the majority of centers, a multidisciplinary team was involved, including an obstetrician/gynecologist in 91.3% of cases and other healthcare professionals less frequently. Respondents indicated that 96% of the centers provided routine pre-pregnancy care, whereas the number of patient visits during pregnancy varied across centers. A formalized care pathway was described in 49.2% of centers, and 20.3% of centers had a predefined protocol for the monitoring of pregnant patients. Access to therapies during pregnancy also was heterogeneous among different centers.Conclusion In international referral centers, a high level of care is provided to patients with rcCTDs before, during, and after pregnancy. No significant discrepancies were found between European and non-European countries. However, this work highlights a potential benefit to streamlining the care approaches across countries to optimize pregnancy and perinatal outcomes among patients with rcCTDs.</style></abstract></record></records></xml>