TY - JOUR T1 - Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results JF - The Journal of Rheumatology JO - J Rheumatol DO - 10.3899/jrheum.220262 SP - jrheum.220262 AU - Nicole Bitencourt AU - Erica Lawson AU - John Bridges AU - Kristine Carandang AU - Ela Chintagunta AU - Peter Chiraseveenuprapund AU - Kimberly DeQuattro AU - Y. Ingrid Goh AU - Tzielan C. Lee AU - Katharine F. Moore AU - Rosemary G. Peterson AU - Jordan E. Roberts AU - Tova Ronis AU - Rebecca E. Sadun AU - Emily A. Smitherman AU - Elizabeth Stringer AU - Patience H. White AU - Joyce C. Chang Y1 - 2022/08/01 UR - http://www.jrheum.org/content/early/2022/07/25/jrheum.220262.abstract N2 - The transition from pediatric to adult care is the focus of growing research. It is important to identify how to direct future research efforts for maximum impact. Our goals were to perform a scoping review of the transition literature, highlight gaps in transition research, and offer stakeholder guidance on the importance and feasibility of research questions designed to fill identified gaps.The transition literature on rheumatic diseases and other common pediatric-onset chronic diseases was grouped and summarized. Based on the findings, a survey was developed and disseminated to pediatric rheumatologists and young adults with rheumatic diseases as well as their caregivers.The transitional care needs of patients, healthcare teams, and caregivers is well-described in the literature. While various transition readiness scales exist, no longitudinal post-transfer study confirms their predictive validity. Multiple outcome measures are used alone or in combination to define a successful transition or intervention. Multimodal interventions are most effective at improving transition-related outcomes. How broader health policy affects transition is poorly studied.Research questions ranked highest for importance and feasibility included those related to identifying and tracking persons with psychosocial vulnerabilities or other risk factors for poor outcomes. Interventions surrounding improving self-efficacy and health literacy were also ranked highly. In contrast to healthcare teams (n=107), young adults/caregivers (n=23) prioritized research surrounding improved work, school or social function.The relevant transition literature is summarized and future research questions prioritized, including the creation of processes to identify and support young adults vulnerable to poor outcomes. ER -