RT Journal Article
SR Electronic
T1 Development of a Patient-centered Quality Measurement Framework for Measuring, Monitoring, and Optimizing Rheumatoid Arthritis Care in Canada
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 326
OP 334
DO 10.3899/jrheum.200688
VO 48
IS 3
A1 Claire E.H. Barber
A1 Karen L. Then
A1 Victoria Bohm
A1 Marc Hall
A1 Deborah A. Marshall
A1 James A. Rankin
A1 Cheryl Barnabe
A1 Glen S. Hazlewood
A1 Linda C. Li
A1 Dianne Mosher
A1 Joanne Homik
A1 Paul MacMullan
A1 Karen Tsui
A1 Kelly English
A1 Diane Lacaille
A1 ,
YR 2021
UL http://www.jrheum.org/content/48/3/326.abstract
AB Objective. The aim of this study was to develop a patient-centered quality measurement framework to address a predefined vision statement and 7 strategic objectives for rheumatoid arthritis (RA) care that was developed in prior qualitative work with arthritis stakeholders.Methods. One hundred forty-seven RA-related performance measures (PMs) were identified from a systematic review. A candidate list of 26 PMs meeting predefined criteria and addressing the strategic objectives previously defined was then assessed during a 3-round (R) modified Delphi. Seventeen panelists with expertise in RA, quality measurement, and/or lived experience with RA rated each PM on a 1–9 scale based on the items of importance, feasibility, and priority for inclusion in the framework during R1 and R3, with a moderated discussion in R2. PMs with median scores ≥ 7 on all 3 items without disagreement were included in the final set, which then underwent public comment.Results. Twenty-one measures were included in the final framework (15 PMs from the Delphi and 6 published system-level measures on access to care and treatment). The measures included 4 addressing early access to care and timely diagnosis, 12 evidence-based care for RA and related comorbidities, 1 addressing patient participation as an informed partner in care, and 4 on patient outcomes.Conclusion. The proposed framework builds upon existing measures capturing early access to care and treatment in RA and adds important PMs to promote high-quality RA care and outcome measurement. In the next phase, the authors will test the framework in clinical practice in addition to addressing certain areas where no suitable PMs were identified.