RT Journal Article
SR Electronic
T1 Priorities for High Quality Care in Rheumatoid Arthritis: Results of Patient, Health Professional, and Policymaker Perspectives
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP jrheum.201044
DO 10.3899/jrheum.201044
A1 Claire E. H.  Barber
A1 Diane Lacaille
A1 Marc Hall
A1 Victoria Bohm
A1 Linda C.  Li
A1 Cheryl Barnabe
A1 Glen S.  Hazlewood
A1 Deborah A.  Marshall
A1 James A.  Rankin
A1 Karen Tsui
A1 Kelly English
A1 Paul MacMullan
A1 Joanne Homik
A1 Dianne Mosher
A1 Karen L.  Then
YR 2020
UL http://www.jrheum.org/content/early/2020/11/10/jrheum.201044.abstract
AB Objective To elucidate the essential elements of high-quality rheumatoid arthritis (RA) care in order to develop a vision statement and a set of strategic objectives for a national RA quality framework. Methods Focus groups and interviews were conducted by experienced qualitative researchers using a semi-structured interview or focus group guide with healthcare professionals, patients, clinic managers, healthcare leaders and policy makers to obtain their perspectives on elements essential to RA care. Purposive sampling provided representation of stakeholder types and regions. Recorded data was transcribed verbatim. Two teams of 2 coders independently analyzed the de-identified transcripts using thematic analysis. Strategic objectives and the vision statement were drafted based on the overarching themes from the qualitative analysis and finalized by a working group. Results A total of 54 stakeholders from 9 Canadian provinces participated in the project (3 focus groups and 19 interviews). Seven strategic objectives were derived from the qualitative analysis representing the following themes: 1) early access and timeliness of care, 2) evidence-informed high-quality care for the ongoing management of RA and comorbidities, 3) availability of patient self-management tools and educational materials for shared decision-making, 4) multidisciplinary care, 5) patient outcomes, and 6) patient experience and satisfaction with care, and 7) Equity, which emerged as an overarching theme. The ultimate vision obtained was “Ensuring patient-centered, high quality care for people living with rheumatoid arthritis”. Conclusion The seven strategic objectives identified highlight priorities for RA quality of care to be used in developing the National RA Quality Measurement Framework.