RT Journal Article
SR Electronic
T1 Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 1164
OP 1167
DO 10.3899/jrheum.181076
VO 46
IS 9
A1 Maria A. Lopez-Olivo
A1 José B. Negrón
A1 Richard J. Zogala
A1 Loreto Carmona
A1 Karla Criner
A1 Niti Goel
A1 Laura Gonzalez-Lopez
A1 Francesca Ingegnoli
A1 Amye Leong
A1 Lyn March
A1 Beverly Shea
A1 Vibeke Strand
A1 Peter Tugwell
A1 Tiffany Westrich-Robertson
A1 Natalia V. Zamora
A1 Robin Christensen
A1 Maria E. Suarez-Almazor
YR 2019
UL http://www.jrheum.org/content/46/9/1164.abstract
AB Objective. This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.Methods. Preliminary data and proposed next steps were outlined and discussed by participants.Results. Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.Conclusion. The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.