RT Journal Article
SR Electronic
T1 Updating OMERACT Core Set of Domains for ANCA-Associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability and Health
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP jrheum.181073
DO 10.3899/jrheum.181073
A1 Nataliya Milman
A1 Eilish McConville
A1 Joanna C.  Robson
A1 Annelies Boonen
A1 Peter Tugwell
A1 George A.  Wells
A1 Dipayan Chaudhuri
A1 Jill Dawson
A1 Gunnar Tomasson
A1 Susan Ashdown
A1 Don Gebhart
A1 Georgia Lanier
A1 Jacqueline Peck
A1 Carol A.  McAlear
A1 Katherine S.  Kellom
A1 Peter F.  Cronholm
A1 Peter A.  Merkel
YR 2019
UL http://www.jrheum.org/content/early/2019/01/23/jrheum.181073.abstract
AB Objective Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.