RT Journal Article SR Electronic T1 Adapting Knowledge Translation Strategies for Rare Rheumatic Diseases JF The Journal of Rheumatology JO J Rheumatol FD The Journal of Rheumatology SP 1462 OP 1468 DO 10.3899/jrheum.151297 VO 43 IS 8 A1 Tania Cellucci A1 Shirley Lee A1 Fiona Webster YR 2016 UL http://www.jrheum.org/content/43/8/1462.abstract AB Rare rheumatic diseases present unique challenges to knowledge translation (KT) researchers. There is often an urgent need to transfer knowledge from research findings into clinical practice to facilitate earlier diagnosis and better outcomes. However, existing KT frameworks have not addressed the specific considerations surrounding rare diseases for which gold standard evidence is not available. Several widely adopted models provide guidance for processes and problems associated with KT. However, they do not address issues surrounding creation or synthesis of knowledge for rare diseases. Additional problems relate to lack of awareness or experience in intended knowledge users, low motivation, and potential barriers to changing practice or policy. Strategies to address the challenges of KT for rare rheumatic diseases include considering different levels of evidence available, linking knowledge creation and transfer directly, incorporating patient and physician advocacy efforts to generate awareness of conditions, and selecting strategies to address barriers to practice or policy change.