RT Journal Article
SR Electronic
T1 Let’s Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 970
OP 973
DO 10.3899/jrheum.160117
VO 43
IS 5
A1 Maarten de Wit
A1 Willemina Campbell
A1 Laura C. Coates
A1 Dafna D. Gladman
A1 Jana James
A1 Chris A. Lindsay
A1 Roland MacDonald
A1 Anna R. Moverley
A1 Alexis Ogdie
A1 Ana-Maria Orbai
A1 Denis O’Sullivan
A1 Andrew Parkinson
A1 Ingrid Steinkoenig
A1 William Tillett
A1 Niti Goel
YR 2016
UL http://www.jrheum.org/content/43/5/970.abstract
AB Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.