TY - JOUR T1 - A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment Report JF - The Journal of Rheumatology JO - J Rheumatol SP - 938 LP - 953 DO - 10.3899/jrheum.100930 VL - 38 IS - 5 AU - GIOVANNI FILOCAMO AU - ALESSANDRO CONSOLARO AU - BENEDETTA SCHIAPPAPIETRA AU - SARA DALPRÀ AU - BIANCA LATTANZI AU - SILVIA MAGNI-MANZONI AU - NICOLINO RUPERTO AU - ANGELA PISTORIO AU - SILVIA PEDERZOLI AU - ADELE CIVINO AU - DINARA GUSEINOVA AU - ESTER MASALA AU - STEFANIA VIOLA AU - ALBERTO MARTINI AU - ANGELO RAVELLI Y1 - 2011/05/01 UR - http://www.jrheum.org/content/38/5/938.abstract N2 - Objective.To develop and test a new multidimensional questionnaire for assessment of children with juvenile idiopathic arthritis (JIA) in standard clinical care. Methods.The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extraarticular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The JAMAR is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 7–18 years for use as a self-report. From March 2007 to September 2009, the questionnaire was completed by the parents of 618 children with JIA in 1814 visits and by 332 children in 749 visits. Results.The JAMAR was found to be feasible and to possess face and content validity. All parents and children reported that the questionnaire was simple and easy to understand. Completion and scoring appeared to be quick, requiring < 15 minutes. There were very few missing data. Parents’ proxy-reported and children’s self-reported data were remarkably concordant. The JAMAR provided thorough information for the study patients about recent medical history and current health status. It performed similarly across different children’s ages and characterized the level of disease activity and disability well. Conclusion.The development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA. ER -