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LetterResearch Letter

Instagram as an Educational Platform for Familial Mediterranean Fever: A 33-Month Experience

Catherine Grandpeix-Guyodo, Zohra Aknouche, Philippe Mertz, Léa Savey, Marion Delplanque, Sofia Hassina Aloui, Véronique Hentgen, Guilaine Boursier, Isabelle Kone-Paut and Sophie Georgin-Lavialle
The Journal of Rheumatology July 2026, jrheum.2026-0278; DOI: https://doi.org/10.3899/jrheum.2026-0278
Catherine Grandpeix-Guyodo
C. Grandpeix-Guyodo, MD, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Zohra Aknouche
Z. Aknouche, MSc, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Philippe Mertz
P. Mertz, MD, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands; Pediatric Department, Versailles Hospital, Le Chesnay, France.
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Léa Savey
L. Savey, MD, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Marion Delplanque
M. Delplanque, MD, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Sofia Hassina Aloui
S.H. Aloui, MSc, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Véronique Hentgen
V. Hentgen, MD, National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; Pediatric Department, Versailles Hospital, Le Chesnay, France; CEREMAIA Working Group, Paris, France.
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Guilaine Boursier
G. Boursier, PhD, National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; CEREMAIA Working Group, Paris, France; Department of Molecular Genetics and Cytogenomics, Rare and Auto Inflammatory Diseases Unit, CHU Montpellier, CEREMAIA, IRMB, INSERM, University of Montpellier, Montpellier, France.
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Isabelle Kone-Paut
I. Kone-Paut, PhD, National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands; CEREMAIA Working Group, Paris, France; Pediatric Rheumatology Department, Kremlin Bicêtre Hospital, AP-HP, Le Kremlin Bicêtre, France.
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Sophie Georgin-Lavialle
S. Georgin-Lavialle, PhD, Sorbonne University, Internal Medicine Department, DMU3ID, FHU INFLAMME, Tenon Hospital, AP-HP, Paris, France; National Reference Center for Auto-Inflammatory Diseases and Inflammatory Amyloidosis (CEREMAIA), France; ERN RITA (European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Disease Network), Utrecht, the Netherlands.
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Abstract

Familial Mediterranean fever (FMF) is the most common monogenic autoinflammatory disease worldwide. Despite therapeutic advances with colchicine and biologic agents, patients with FMF face persistent challenges in accessing reliable educational resources in their native language. Health literacy gaps contribute to suboptimal disease management, nonadherence to treatment, and reduced quality of life.

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The Journal of Rheumatology: 53 (9)
The Journal of Rheumatology
Vol. 53, Issue 9
1 Sep 2026
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Instagram as an Educational Platform for Familial Mediterranean Fever: A 33-Month Experience
Catherine Grandpeix-Guyodo, Zohra Aknouche, Philippe Mertz, Léa Savey, Marion Delplanque, Sofia Hassina Aloui, Véronique Hentgen, Guilaine Boursier, Isabelle Kone-Paut, Sophie Georgin-Lavialle
The Journal of Rheumatology Jul 2026, jrheum.2026-0278; DOI: 10.3899/jrheum.2026-0278

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Instagram as an Educational Platform for Familial Mediterranean Fever: A 33-Month Experience
Catherine Grandpeix-Guyodo, Zohra Aknouche, Philippe Mertz, Léa Savey, Marion Delplanque, Sofia Hassina Aloui, Véronique Hentgen, Guilaine Boursier, Isabelle Kone-Paut, Sophie Georgin-Lavialle
The Journal of Rheumatology Jul 2026, jrheum.2026-0278; DOI: 10.3899/jrheum.2026-0278
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