Article Information
PubMed
Published By
Print ISSN
Online ISSN
History
- Published online June 1, 2025.
Copyright & Usage
© 2025 The Journal of Rheumatology
Author Information
- Tiphaine Goulenok,
- Maria Carvalho,
- Arthur Mageau,
- Benjamin Terrier,
- Eric Hachulla,
- Thomas Papo and
- Karim Sacré
- T. Goulenok, MD, Service de Médecine Interne, Hôpital Bichat Claude Bernard, AP-HP, Université Paris Cité, Paris, France.
- M. Carvalho, RN, Service de Médecine Interne, Hôpital Bichat Claude Bernard, AP-HP, Université Paris Cité, Paris, France.
- A. Mageau, MD, PhD, Service de Médecine Interne, Hôpital Bichat Claude Bernard, AP-HP, Université Paris Cité, Paris, France.
- B. Terrier, MD, PhD, Service de Médecine Interne, Hôpital Cochin Port Royal, AP-HP, Université Paris Cité, Paris, France.
- E. Hachulla, MD, PhD, Service de Médecine Interne et Immunologie Clinique, Hôpital Claude Huriez, CHRU de Lille, Lille, France.
- T. Papo, MD, Service de Médecine Interne, Hôpital Bichat Claude Bernard, AP-HP, Université Paris Cité, Paris, France.
- K. Sacré, MD, PhD, Service de Médecine Interne, Hôpital Bichat Claude Bernard, AP-HP, Université Paris Cité, Paris, France; INSERM UMR1149, CNRS ERL8252, Université Paris Cité, Laboratoire d'Excellence Inflamex, Paris, France.
- ACKNOWLEDGMENT: For their help with the dissemination of the survey, we acknowledge the following French associations dedicated to patients with IMIDs: AFM Télethon, Kourir, Association Française des syndromes de Gougerot Sjögren et des syndrome secs, Association des sclérodermies de France, Association France Lupus, France Vascularite, Lupus France, Association française des polychondrite atrophiante, and Association Takayasu France.
CONTRIBUTIONS: TG and KS designed the study, directed the project, conducted the analysis, and wrote the manuscript. MC, AM, BT, EH, and TP were involved in the screening of patients. All authors reviewed and approved of the final manuscript.
FUNDING: The study was supported by Assistance Publique Hôpitaux de Paris (AP-HP), Université Paris Cité, Paris, France, and the Directorate of Health Care Supply of the French Ministry of Health. The funding bodies had no specific role in direction of the project. The use of funds was coordinated by the Rare Diseases Healthcare Networks FAI2R.
COMPETING INTERESTS: TG reports fees for serving on advisory boards and giving lectures (GSK) outside the scope of the current study. KS reported fees for scientific committee work (Novartis) outside the scope of the current study. The remaining authors declare no conflicts of interest relevant to this article.
ETHICS AND PATIENT CONSENT: The research followed the principles of informed consent with assurances of confidentiality and anonymity. No data were collected on identity, exact age, ethnicity, geographical location, socio-professional category, sexual preference, or IP identification. Informed consent for the publication of identified study results was obtained from all individual participants included in the study. The study was approved by the Institutional Review Board of Université Paris Cité (IRB 00006477).
DATA AVAILABILITY: The data described in the manuscript will be made available on request pending application and approval of the authors.
- Address correspondence to Prof. K. Sacré, Department of Internal Medicine, Bichat Hospital, AP-HP, 46 rue Henri Huchard, 75018 Paris, France. Email : karim.sacre{at}aphp.fr.
