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Open Access

Canadian Rheumatology Association Guidance for Developing and Endorsing Quality Measures to Support Learning Health Systems

Racheal Githumbi, Claire E.H. Barber, Susan J. Bartlett, Karine Toupin-April, Marinka Twilt, Diane Lacaille, Cheryl Barnabe, Kiran Dhiman, Alison M. Hoens, Adrian Grebowicz, Tara McMillan and Jessica Widdifield
The Journal of Rheumatology April 2025, jrheum.2024-1065; DOI: https://doi.org/10.3899/jrheum.2024-1065
Racheal Githumbi
R. Githumbi, MBT, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
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Claire E.H. Barber
C.E.H. Barber, MD, PhD, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; Arthritis Research Canada, Vancouver, British Columbia, Canada.
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Susan J. Bartlett
S.J. Bartlett, PhD, Arthritis Research Canada, Vancouver, British Columbia, Canada; Department of Medicine, McGill Medicine, Montreal, Quebec, Canada; Research Institute, McGill University Health Centre, Montreal, Quebec, Canada.
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Karine Toupin-April
K. Toupin-April, PhD, School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Children's Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Institut du Savoir Montfort, Ottawa, Ontario, Canada.
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Marinka Twilt
M. Twilt, MD, MSCE, PhD, Department of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
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Diane Lacaille
D. Lacaille, MDCM, MHSc, Arthritis Research Canada, Vancouver, British Columbia, Canada; Division of Rheumatology, Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
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Cheryl Barnabe
C. Barnabe, MD, MSc, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; Arthritis Research Canada, Vancouver, British Columbia, Canada.
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Kiran Dhiman
K. Dhiman, MPH, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
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Alison M. Hoens
A.M. Hoens, MSc, Arthritis Research Canada, Vancouver, British Columbia, Canada; University of British Columbia Department of Physical Therapy, Vancouver, British Columbia, Canada.
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Adrian Grebowicz
A. Grebowicz, MD, RTT, Western University, Schulich School of Medicine and Dentistry, London, Ontario, Canada.
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Tara McMillan
T. McMillan, MD, MSc, Division of Rheumatology, Department of Pediatrics, University of Manitoba, Children's Hospital of Winnipeg, Winnipeg, Manitoba, Canada.
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Jessica Widdifield
J. Widdifield, PhD, Sunnybrook Research Institute, Toronto, Ontario, Canada; ICES, Toronto, Ontario, Canada; University of Toronto Institute of Health Policy, Management & Evaluation, Toronto, Ontario, Canada.
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Abstract

Objective To review methods for developing and endorsing quality measures (QMs) to inform a national quality measurement framework for rheumatology care in Canada.

Methods We conducted a rapid environmental scan of QM development organizations from Canada, the United Kingdom, the United States, and Australia. Major phases in the development of QMs were abstracted. The results were reviewed and synthesized with members of the Canadian Rheumatology Association (CRA) Digital Measurement Subcommittee through iterative review across 3 virtual meetings. The guidance was approved at the committee and the CRA board level.

Results Five key steps in the measure development cycle are proposed: conceptualization and prioritization, measure specification development, testing and validation, implementation and reporting, and continuous evaluation and maintenance. Foundational to all phases is the engagement of individuals from diverse backgrounds with lived experience of disease, healthcare providers, quality measurement scientists, and partner organizations. Measures should be aligned with domains of quality (effectiveness, efficiency, equity, patient-centeredness, safety and timeliness of care delivery) and be developed transparently. Endorsement of future QMs should, at minimum, prioritize relevance/importance, validity, feasibility, and acceptability and use/usability.

Conclusion This guidance document establishes a comprehensive and relevant framework for the development and/or endorsement of QMs in Canadian rheumatology care. This framework will permit streamlining of future quality improvement efforts at the national level.

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The Journal of Rheumatology: 53 (4)
The Journal of Rheumatology
Vol. 53, Issue 4
1 Apr 2026
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Canadian Rheumatology Association Guidance for Developing and Endorsing Quality Measures to Support Learning Health Systems
Racheal Githumbi, Claire E.H. Barber, Susan J. Bartlett, Karine Toupin-April, Marinka Twilt, Diane Lacaille, Cheryl Barnabe, Kiran Dhiman, Alison M. Hoens, Adrian Grebowicz, Tara McMillan, Jessica Widdifield
The Journal of Rheumatology Apr 2025, jrheum.2024-1065; DOI: 10.3899/jrheum.2024-1065

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Canadian Rheumatology Association Guidance for Developing and Endorsing Quality Measures to Support Learning Health Systems
Racheal Githumbi, Claire E.H. Barber, Susan J. Bartlett, Karine Toupin-April, Marinka Twilt, Diane Lacaille, Cheryl Barnabe, Kiran Dhiman, Alison M. Hoens, Adrian Grebowicz, Tara McMillan, Jessica Widdifield
The Journal of Rheumatology Apr 2025, jrheum.2024-1065; DOI: 10.3899/jrheum.2024-1065
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