Abstract
Objective Online Patient reported outcome measures (PROMs) enable remote collection of perceptions of health status, function and wellbeing. We aimed to explore patterns of PROM completion in patients with early inflammatory arthritis (EIA) recruited to the national early inflammatory arthritis audit (NEIAA).
Methods NEIAA is an observational cohort study design, we included adults with a new diagnosis of EIA from May 2018-March 2020. Primary outcome was PROM completion, at baseline, three and 12 months. Mixed effects logistic regression and spatial regression models were used to identify associations between demographics (age, gender, ethnicity, deprivation, smoking and comorbidity), clinical commissioning groups, and PROM completion.
Results 11,986 EIA patients were included, of which 5,331 (44.5%) completed at least one PROM. Patients from ethnic minority backgrounds were less likely to return a PROM (Odds ratio 0.57, 95% CI 0.48 to 0.66). Greater deprivation (0.73, 95% CI 0.64 to 0.83), male gender (0.86, 95% CI 0.78 to 0.94), higher comorbidity burden (0.95, 95% CI 0.91 to 0.99) and current smoker status (0.73, 95% CI 0.64 to 0.82) also reduced odds of PROM completion. Spatial analysis identified two regions with high (North of England) and low (South-East of England) PROM completion.
Conclusion We define key patient characteristics (including ethnicity) that influence PROM engagement using a national clinical audit. We observed an association between locality and PROM completion with varying response rates across England regions. Completion rates could benefit from targeted education for these groups.
