Research ArticleAccepted Article
Patient perspectives on outcome domains of medication adherence trials in inflammatory arthritis: an international OMERACT focus group study
Charlotte L. Bekker, Sacha Bossina, Mary A. de Vera, Susan J. Bartlett, Maarten de Wit, Lyn March, Beverley Shea, Vicki Evans, Dawn Richards, Allison Tong, Peter Tugwell, Kathleen Tymms, Marieke Scholte-Voshaar, Ayano Kelly and Bart J.F. van den Bemt
The Journal of Rheumatology May 2021, jrheum.201568; DOI: https://doi.org/10.3899/jrheum.201568
Charlotte L. Bekker
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Sacha Bossina
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Mary A. de Vera
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Susan J. Bartlett
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Maarten de Wit
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Lyn March
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Beverley Shea
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Vicki Evans
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Dawn Richards
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Allison Tong
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Peter Tugwell
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Kathleen Tymms
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Marieke Scholte-Voshaar
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Ayano Kelly
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Bart J.F. van den Bemt
Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands. This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson). Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Article Information
jrheum.201568
PubMed
Published By
Print ISSN
Online ISSN
History
- Published online May 15, 2021.
Article Versions
- You are currently viewing a Latest version of this article (May 15, 2021 - 04:00).
- latest version (July 15, 2021 - 04:00).
- View the most recent version of this article
Copyright & Usage
© 2021 The Journal of Rheumatology
Author Information
- Charlotte L. Bekker,
- Sacha Bossina,
- Mary A. de Vera,
- Susan J. Bartlett,
- Maarten de Wit,
- Lyn March,
- Beverley Shea,
- Vicki Evans,
- Dawn Richards,
- Allison Tong,
- Peter Tugwell,
- Kathleen Tymms,
- Marieke Scholte-Voshaar,
- Ayano Kelly and
- Bart J.F. van den Bemt
- Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands; Department of Rheumatology, Liverpool Hospital, Sydney, Australia; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; OMERACT Patient Research Partner, the Netherlands; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Faculty of Health, University of Canberra, ACT, Australia; Five02 Labs Inc, Toronto, Canada; Canadian Arthritis Patient Alliance, Toronto, Canada; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia; University of Twente, Enschede, The Netherlands; South Western Clinical School, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia; Sint Maartenskliniek, Nijmegen, The Netherlands.
This project was supported by a 2020 Arthritis Australia Project Grant (Marion A Simpson Grant funded by the Estate of the Late Marion Alice Simpson).
Corresponding author: Dr. Charlotte Bekker, Department of Pharmacy, Radboud university medical centre, Research Institute for Health Sciences, Nijmegen, The Netherlands. Charlotte.bekker@radboudumc.nl
Article usage
Statistics from Altmetric.com
In this issue
The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Accepted manuscript
Patient perspectives on outcome domains of medication adherence trials in inflammatory arthritis: an international OMERACT focus group study
Charlotte L. Bekker, Sacha Bossina, Mary A. de Vera, Susan J. Bartlett, Maarten de Wit, Lyn March, Beverley Shea, Vicki Evans, Dawn Richards, Allison Tong, Peter Tugwell, Kathleen Tymms, Marieke Scholte-Voshaar, Ayano Kelly, Bart J.F. van den Bemt
The Journal of Rheumatology May 2021, jrheum.201568; DOI: 10.3899/jrheum.201568
Accepted manuscript
Patient perspectives on outcome domains of medication adherence trials in inflammatory arthritis: an international OMERACT focus group study
Charlotte L. Bekker, Sacha Bossina, Mary A. de Vera, Susan J. Bartlett, Maarten de Wit, Lyn March, Beverley Shea, Vicki Evans, Dawn Richards, Allison Tong, Peter Tugwell, Kathleen Tymms, Marieke Scholte-Voshaar, Ayano Kelly, Bart J.F. van den Bemt
The Journal of Rheumatology May 2021, jrheum.201568; DOI: 10.3899/jrheum.201568