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Research ArticleAccepted Article

Development of an instrument for patient self-assessment in psoriatic arthritis

Farrouq Mahmood, Beverley English, Robin Waxman and Philip S. Helliwell
The Journal of Rheumatology May 2021, jrheum.210010; DOI: https://doi.org/10.3899/jrheum.210010
Farrouq Mahmood
Rheumatology Department, Bradford Teaching Hospitals Foundation Trust, Bradford, UK; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK. Funding: No specific funding was received from any bodies in the public, commercial or notfor- profit sectors to carry out the work described in this article. Address correspondence to Dr Philip S. Helliwell, LIRMM, Chapel Allerton Hospital, Chapeltown Road, Leeds LS7 4SA, UK. Email: p.helliwell@leeds.ac.uk
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Beverley English
Rheumatology Department, Bradford Teaching Hospitals Foundation Trust, Bradford, UK; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK. Funding: No specific funding was received from any bodies in the public, commercial or notfor- profit sectors to carry out the work described in this article. Address correspondence to Dr Philip S. Helliwell, LIRMM, Chapel Allerton Hospital, Chapeltown Road, Leeds LS7 4SA, UK. Email: p.helliwell@leeds.ac.uk
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Robin Waxman
Rheumatology Department, Bradford Teaching Hospitals Foundation Trust, Bradford, UK; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK. Funding: No specific funding was received from any bodies in the public, commercial or notfor- profit sectors to carry out the work described in this article. Address correspondence to Dr Philip S. Helliwell, LIRMM, Chapel Allerton Hospital, Chapeltown Road, Leeds LS7 4SA, UK. Email: p.helliwell@leeds.ac.uk
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Philip S. Helliwell
Rheumatology Department, Bradford Teaching Hospitals Foundation Trust, Bradford, UK; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, and NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK. Funding: No specific funding was received from any bodies in the public, commercial or notfor- profit sectors to carry out the work described in this article. Address correspondence to Dr Philip S. Helliwell, LIRMM, Chapel Allerton Hospital, Chapeltown Road, Leeds LS7 4SA, UK. Email: p.helliwell@leeds.ac.uk
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Abstract

Objective Due to the recent pandemic, in person scheduled rheumatology appointments in many countries have been reserved for urgent cases only. Here we report the development of a multidimensional, patient completed disease assessment tool for use in psoriatic arthritis (PsA).

Methods A focus group development and education method was used, followed by a paired observation design to assess feasibility and validity. The psoriatic arthritis disease activity score (PASDAS) was used as the basis for the clinical assessments but elements of this tool were modified during the focus group sessions.

Results A preliminary tool assessed tender and swollen joint counts, enthesitis, dactylitis, area of skin involved by psoriasis, and scores for global disease activity, fatigue and spinal pain. In parallel assessments good agreement was found between subject and health professional assessors, though overall disease activity was low.

Conclusion A self-assessment tool for disease activity in psoriatic arthritis has been developed in conjunction with patients demonstrating generally good agreement between patients and health professionals but more validation work is needed before it can be recommended for clinical practice.

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The Journal of Rheumatology
Vol. 52, Issue 6
1 Jun 2025
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Accepted manuscript
Development of an instrument for patient self-assessment in psoriatic arthritis
Farrouq Mahmood, Beverley English, Robin Waxman, Philip S. Helliwell
The Journal of Rheumatology May 2021, jrheum.210010; DOI: 10.3899/jrheum.210010

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Accepted manuscript
Development of an instrument for patient self-assessment in psoriatic arthritis
Farrouq Mahmood, Beverley English, Robin Waxman, Philip S. Helliwell
The Journal of Rheumatology May 2021, jrheum.210010; DOI: 10.3899/jrheum.210010
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