Research ArticleAccepted Article
Differences in Health Care Transition Views, Practices, and Barriers Amongst North American Pediatric Rheumatology Clinicians from 2010 to 2018
Kiana Johnson, Cuoghi Edens, Rebecca E. Sadun, Peter Chira, Aimee O. Hersh, Y. Ingrid Goh, Joyce Hui-Yuen, Nora G. Singer, Lynn R. Spiegel, Jennifer N. Stinson, Patience H. White and Erica Lawson for the CARRA Transition Workgroup
The Journal of Rheumatology February 2021, jrheum.200196; DOI: https://doi.org/10.3899/jrheum.200196
Kiana Johnson
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Cuoghi Edens
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Rebecca E. Sadun
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Peter Chira
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Aimee O. Hersh
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Y. Ingrid Goh
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Joyce Hui-Yuen
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Nora G. Singer
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Lynn R. Spiegel
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Jennifer N. Stinson
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Patience H. White
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
Erica Lawson
Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA. Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
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- Published online February 1, 2021.
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© 2021 The Journal of Rheumatology
Author Information
- Kiana Johnson,
- Cuoghi Edens,
- Rebecca E. Sadun,
- Peter Chira,
- Aimee O. Hersh,
- Y. Ingrid Goh,
- Joyce Hui-Yuen,
- Nora G. Singer,
- Lynn R. Spiegel,
- Jennifer N. Stinson,
- Patience H. White and
- Erica Lawson; for the CARRA Transition Workgroup
- Department of Pediatrics, East Tennessee State University, Johnson City, TN; Departments of Medicine and Pediatrics, Sections of Rheumatology and Pediatric Rheumatology, University of Chicago, Chicago, IL; Departments of Medicine and Pediatrics, Divisions of Rheumatology, Duke University Medical Center, Durham, NC; Pediatric Rheumatology, University of California San Diego, Rady Children’s Hospital, San Diego, CA; Pediatrics/Rheumatology, University of Utah, Salt Lake City, UT; Division of Rheumatology/Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada; Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada; Pediatric Rheumatology, Cohen Children's Medical Center, New Hyde Park, NY; Departments of Medicine and Pediatrics, Division of Rheumatology, The Metrohealth System and Case Western Reserve University School of Medicine, Cleveland, OH; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada; Got Transition™ and Department of Medicine, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC; University of California, San Francisco, San Francisco, CA.
Corresponding Author: Kiana Johnson Johnsonkr3@etsu.edu
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In this issue
The Journal of Rheumatology
Vol. 51, Issue 3
1 Mar 2024
Accepted manuscript
Differences in Health Care Transition Views, Practices, and Barriers Amongst North American Pediatric Rheumatology Clinicians from 2010 to 2018
Kiana Johnson, Cuoghi Edens, Rebecca E. Sadun, Peter Chira, Aimee O. Hersh, Y. Ingrid Goh, Joyce Hui-Yuen, Nora G. Singer, Lynn R. Spiegel, Jennifer N. Stinson, Patience H. White, Erica Lawson
The Journal of Rheumatology Feb 2021, jrheum.200196; DOI: 10.3899/jrheum.200196
Accepted manuscript
Differences in Health Care Transition Views, Practices, and Barriers Amongst North American Pediatric Rheumatology Clinicians from 2010 to 2018
Kiana Johnson, Cuoghi Edens, Rebecca E. Sadun, Peter Chira, Aimee O. Hersh, Y. Ingrid Goh, Joyce Hui-Yuen, Nora G. Singer, Lynn R. Spiegel, Jennifer N. Stinson, Patience H. White, Erica Lawson
The Journal of Rheumatology Feb 2021, jrheum.200196; DOI: 10.3899/jrheum.200196