Research ArticleArticle
Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases Living in the United States
Colleen K. Correll, Mitali Dave, Anne F. Paul, Vincent Del Gaizo, Suzanne Schrandt, Roushanac S. Partovi and Esi M. Morgan
The Journal of Rheumatology February 2020, jrheum.190934; DOI: https://doi.org/10.3899/jrheum.190934
Colleen K. Correll
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Mitali Dave
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Anne F. Paul
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Vincent Del Gaizo
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Suzanne Schrandt
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Roushanac S. Partovi
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
Esi M. Morgan
The lead investigator, CKC, was supported by Childhood Arthritis and Rheumatology Research Alliance (CARRA) to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service) was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). C.K. Correll, MD, MPH, Assistant Professor, University of Minnesota Masonic Children’s Hospital, Department of Pediatrics, Division of Rheumatology, Minneapolis, Minnesota; M. Dave, MBA, President, Cure JM Foundation, Encinitas, California; A.F. Paul, MA, MBA, Project Manager, Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio; V. Del Gaizo, Director of Strategic Partnerships & Patient Engagement, CARRA, Milwaukee, Wisconsin; S. Schrandt, JD, Director of Patient Engagement, Arthritis Foundation, Atlanta, Georgia; R.S. Partovi, MPH, Lupus Foundation of America, Washington, DC; E.M. Morgan, MD, MSCE, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA. Address correspondence to Dr. C.K. Correll, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN 55410, USA. Email: corr0250@umn.edu.
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In this issue
The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases Living in the United States
Colleen K. Correll, Mitali Dave, Anne F. Paul, Vincent Del Gaizo, Suzanne Schrandt, Roushanac S. Partovi, Esi M. Morgan
The Journal of Rheumatology Feb 2020, jrheum.190934; DOI: 10.3899/jrheum.190934
Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases Living in the United States
Colleen K. Correll, Mitali Dave, Anne F. Paul, Vincent Del Gaizo, Suzanne Schrandt, Roushanac S. Partovi, Esi M. Morgan
The Journal of Rheumatology Feb 2020, jrheum.190934; DOI: 10.3899/jrheum.190934