Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases living in the United States

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.

From the University of Minnesota, Department of Pediatrics, University of Cincinnati, Department of Pediatrics, Childhood Arthritis and Rheumatology Research Alliance (CARRA), and Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) consortium. The lead investigator, CKC, was supported by CARRA to conduct this study. The Research Committee of PARTNERS (Patients, Advocates and Rheumatology Teams Network for Research and Service), was funded by a PCORI (Patient-Centered Outcomes Research Institute) Patient Powered Research Network (PPRN-1306-04601) grant (Co-PIs Del Gaizo, Schanberg). Corresponding author: Colleen K. Correll, MD, MPH, Pediatric Rheumatology, University of Minnesota, 2450 Riverside Ave S., East Bldg Rm 668, Minneapolis, MN, 55410, Email: corr0250@umn.edu.