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Research ArticleAccepted Article

Feasibility and face validity of outcome measures for use in future studies of Polymyalgia Rheumatica (PMR): An OMERACT Study

Max Yates, Claire E Owen, Sara Muller, Karly Graham, Lorna Neill, Helen Twohig, Maarten Boers, Mar Pujades-Rodriguez, Susan Goodman, Jonathan Cheah, Christian Dejaco, Chetan Mukhtyar, Berit Dalsgaard Nielsen, Joanna Robson, Lee S Simon, Beverley Shea, Sarah L Mackie and Catherine L Hill on behalf of the OMERACT PMR Working Group
The Journal of Rheumatology February 2020, jrheum.190575; DOI: https://doi.org/10.3899/jrheum.190575
Max Yates
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Claire E Owen
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Sara Muller
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Karly Graham
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Lorna Neill
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Helen Twohig
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Maarten Boers
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Mar Pujades-Rodriguez
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Susan Goodman
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Jonathan Cheah
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Christian Dejaco
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Chetan Mukhtyar
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Berit Dalsgaard Nielsen
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Joanna Robson
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Lee S Simon
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Beverley Shea
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Sarah L Mackie
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Catherine L Hill
From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia. Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk
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Article Information

jrheum.190575
DOI 
https://doi.org/10.3899/jrheum.190575
PubMed 
32007937

Published By 
The Journal of Rheumatology
Print ISSN 
0315-162X
Online ISSN 
1499-2752
History 
  • Published online February 1, 2020.

Article Versions

  • You are currently viewing a Latest version of this article (February 1, 2020 - 04:00).
  • latest version (August 1, 2020 - 04:00).
  • View the most recent version of this article
Copyright & Usage 
© 2020 The Journal of Rheumatology

Author Information

  1. Max Yates,
  2. Claire E Owen,
  3. Sara Muller,
  4. Karly Graham,
  5. Lorna Neill,
  6. Helen Twohig,
  7. Maarten Boers,
  8. Mar Pujades-Rodriguez,
  9. Susan Goodman,
  10. Jonathan Cheah,
  11. Christian Dejaco,
  12. Chetan Mukhtyar,
  13. Berit Dalsgaard Nielsen,
  14. Joanna Robson,
  15. Lee S Simon,
  16. Beverley Shea,
  17. Sarah L Mackie and
  18. Catherine L Hill; on behalf of the OMERACT PMR Working Group
  1. From Epidemiology Centre Versus Arthritis, Norwich Medical School, University of East Anglia, Norwich, United Kingdom; Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom; Department of Rheumatology, Austin Health, Melbourne, Australia; Department of Medicine, University of Melbourne, Melbourne, Australia; Primary Care Centre Versus Arthritis, Research Institute for Primary Care & Health Sciences, Keele University, Keele, United Kingdom; Department of Epidemiology and Biostatistics, and Amsterdam Rheumatology and Immunology Center, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, the Netherlands; Leeds Institute of Health Sciences, University of Leeds, Leeds, United Kingdom; Department of Medicine, Hospital for Special Surgery, New York, United States; Department of Rheumatology and Immunology, Medical University Graz, Austria; Department of Rheumatology, Hospital of Bruneck, Bruneck, Italy; Department of Rheumatology, Norfolk and Norwich University Hospital, Norwich, United Kingdom; Department of Rheumatology, Aarhus University Hospital, Aarhus, Denmark; Department of Rheumatology, Faculty of Health and Applied Sciences, University of the West of England, Bristol, United Kingdom; SDG LLC, Cambridge, Massachusetts, United States; School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom; NIHR Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, United Kingdom; Discipline of Medicine, The University of Adelaide, Adelaide, Australia; Rheumatology Unit, The Queen Elizabeth and Royal Adelaide Hospitals, Adelaide, Australia.
    Address correspondence to Max Yates, Department of Rheumatology, East Suffolk and North Essex Foundation Trust, Ipswich, United Kingdom, Email: maxyates{at}doctors.org.uk

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The Journal of Rheumatology: 53 (1)
The Journal of Rheumatology
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1 Jan 2026
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Accepted manuscript
Feasibility and face validity of outcome measures for use in future studies of Polymyalgia Rheumatica (PMR): An OMERACT Study
Max Yates, Claire E Owen, Sara Muller, Karly Graham, Lorna Neill, Helen Twohig, Maarten Boers, Mar Pujades-Rodriguez, Susan Goodman, Jonathan Cheah, Christian Dejaco, Chetan Mukhtyar, Berit Dalsgaard Nielsen, Joanna Robson, Lee S Simon, Beverley Shea, Sarah L Mackie, Catherine L Hill
The Journal of Rheumatology Feb 2020, jrheum.190575; DOI: 10.3899/jrheum.190575

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Accepted manuscript
Feasibility and face validity of outcome measures for use in future studies of Polymyalgia Rheumatica (PMR): An OMERACT Study
Max Yates, Claire E Owen, Sara Muller, Karly Graham, Lorna Neill, Helen Twohig, Maarten Boers, Mar Pujades-Rodriguez, Susan Goodman, Jonathan Cheah, Christian Dejaco, Chetan Mukhtyar, Berit Dalsgaard Nielsen, Joanna Robson, Lee S Simon, Beverley Shea, Sarah L Mackie, Catherine L Hill
The Journal of Rheumatology Feb 2020, jrheum.190575; DOI: 10.3899/jrheum.190575
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