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Research ArticleAccepted Article

Development of a Core Domain Set of Outcomes for Shared Decision Making Interventions: An Omeract White Paper and Stakeholder Interviews

Karine Toupin April, Jennifer L. Barton, Liana Fraenkel, Alexa Meara, Linda C. Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E. Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina Campbell, Rieke Alten, Suvi Karuranga, Esi M. Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J. Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J. Bartlett, Jasvinder A. Singh and Peter Tugwell
The Journal of Rheumatology February 2019, jrheum.181071; DOI: https://doi.org/10.3899/jrheum.181071
Karine Toupin April
K. Toupin-April, PhD, Associate Scientist, Children’s Hospital of Eastern Ontario Research Institute, Assistant Professor, Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Canada; J.L. Barton, MD, VA Portland Health Care System, Associate Professor, Oregon Health & Science University, Portland, USA; L. Fraenkel, MD, Professor of Medicine, Department of Internal Medicine, Yale University, New Haven, USA; A. Meara, MD, The Ohio State University, Columbus, USA; L. C. Li, PT, PhD, Professor, Department of Physical Therapy, University of British Columbia; Senior Scientist, Arthritis Research Canada, Vancouver, Canada; P. Brooks, MD, Professor, School of Population and Global Health, University of Melbourne, Melbourne, Australia; M. de Wit, PhD, Patient Research Partner, Amsterdam University Medical Centre, Dept. Medical Humanities, Amsterdam, The Netherlands; D. Stacey, RN, PhD, Full Professor, School of Nursing, University of Ottawa, Senior Scientist, The Ottawa Hospital Research Institute, Ottawa, Canada; F. Légaré, MD, PhD, Full Professor, Department of Family Medicine and Emergency Medicine, Université Laval, Quebec City, Canada; B. Shea, PhD, Clinical Scientist, Bruyère Research Institute, Senior Methodologist, Ottawa Health Research Institute, Adjunct Professor, Department of Epidemiology and Community Medicine, University of Ottawa, Ottawa, Canada; A. Lyddiatt, Patient Research Partner, Canada; C. Hofstetter, Patient Research Partner, Canada; R. Christensen, MSc, PhD, Professor, Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen, & Department of Rheumatology, Odense University Hospital, Denmark; M. Scholte-Voshaar, MSc, Patient Research Partner, Department Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; M.E. Suarez-Almazor MD, PhD, Professor, Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, USA; A. Boonen, MD, PhD, Professor of Rheumatology, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; T. Meade, PhD, Professor, Western Sydney University and Faculty of Medicine, University of Sydney, Sydney, Australia; L. March, MD, PhD, Professor, Department of Medicine, University of Sydney, Institute of Bone and Joint Research and Department of Rheumatology, Royal North Shore Hospital, Sydney, Australia; J. E. Jull, OT, PhD, Assistant Professor, School of Rehabilitation Therapy, Queen’s University, Kingston, Canada; W. Campbell, LLB, Patient Research Partner, Toronto Western Hospital, University Health Network, Canada; R. Alten, MD, PhD, Professor of Medicine, Head of Department of Internal Medicine II, Director of Rheumatology Research Center, Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Charité, University Medicine Berlin, Berlin, Germany; S. Karuranga, Researcher, Access to Medicine Foundation, Haarlem, The Netherlands; E. M. Morgan, MD, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, USA; A. Kelly, MD, PhD student, Canberra Rheumatology, Department of Rheumatology, Canberra Hospital, and College of Health and Medicine, Australian National University; J. Kaufman, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia; S. Hill, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia; L. J. Maxwell, PhD, Ottawa Hospital Research Institute, Centre for Practice-Changing Research and University of Ottawa, Ottawa, Canada; D. Beaton, PhD, Senior Scientist, Institute for Work & Health, Associate Professor, Institute Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada; Y. El-Miedany, MD, Professor, Rheumatology and Rehabilitation Ain Shams University, Egypt; Honorary senior clinical lecturer, King's college London, United Kingdom; S. Mittoo, MD, Rheumatologist, Involved Medicine and Adjunct Professor University of Toronto, Toronto, Canada, S. Bartlett, Professor, McGill University, Montreal, Canada; J. A. Singh, MD Professor, University of Alabama at Birmingham, Birmingham, USA; P. Tugwell, MD, Professor, Division of Rheumatology, Department of Medicine, and School of Epidemiology and Public Health ,Faculty of Medicine, University of Ottawa; Senior Scientist, Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada. K. Toupin-April is funded by the Children’s Hospital of Eastern Ontario Research Institute and The Arthritis Society. J. L. Barton’s research reported in this publication was supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases, part of the National Institutes of Health, under Award Number K23-AR-064372. L. Fraenkel’s research reported in this publication was supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases, part of the National Institutes of Health, under Award Number AR060231-01. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. D. Stacey holds a University of Ottawa Research Chair in Knowledge Translation to Patients. F. Légaré holds a Tier 1 Canada Research Chair in Shared Decision Making and Knowledge Translation. R. Christensen’s research at the Parker Institute is supported by grants from The Oak Foundation (OCAY-13-309). L. March’s research is supported by the Northern Sydney Local Health District. S. Hill is supported by La Trobe University. P. Tugwell holds a Canada Research Chair. Address correspondence to Dr. K. Toupin-April, Children’s Hospital of Eastern Ontario Research Institute, 401 Smyth Road, Ottawa, Ontario K1H 8L1, Canada. E-mail: ktoupin@cheo.on.ca.
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Jennifer L. Barton
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Liana Fraenkel
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Alexa Meara
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Linda C. Li
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Peter Brooks
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Dawn Stacey
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France Légaré
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Robin Christensen
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Yasser El-Miedany
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Jasvinder A. Singh
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Article Information

jrheum.181071
DOI 
https://doi.org/10.3899/jrheum.181071
PubMed 
30709963

Published By 
The Journal of Rheumatology
Print ISSN 
0315-162X
Online ISSN 
1499-2752
History 
  • Published online February 1, 2019.

Article Versions

  • You are currently viewing a Latest version of this article (February 1, 2019 - 04:00).
  • latest version (February 15, 2019 - 04:00).
  • View the most recent version of this article
Copyright & Usage 
© 2019 The Journal of Rheumatology

Author Information

  1. Karine Toupin April,
  2. Jennifer L. Barton,
  3. Liana Fraenkel,
  4. Alexa Meara,
  5. Linda C. Li,
  6. Peter Brooks,
  7. Maarten de Wit,
  8. Dawn Stacey,
  9. France Légaré,
  10. Beverley Shea,
  11. Anne Lyddiatt,
  12. Cathie Hofstetter,
  13. Robin Christensen,
  14. Marieke Scholte Voshaar,
  15. Maria E. Suarez-Almazor,
  16. Annelies Boonen,
  17. Tanya Meade,
  18. Lyn March,
  19. Janet Elizabeth Jull,
  20. Willemina Campbell,
  21. Rieke Alten,
  22. Suvi Karuranga,
  23. Esi M. Morgan,
  24. Ayano Kelly,
  25. Jessica Kaufman,
  26. Sophie Hill,
  27. Lara J. Maxwell,
  28. Dorcas Beaton,
  29. Yasser El-Miedany,
  30. Shikha Mittoo,
  31. Susan J. Bartlett,
  32. Jasvinder A. Singh and
  33. Peter Tugwell
  1. K. Toupin-April, PhD, Associate Scientist, Children’s Hospital of Eastern Ontario Research Institute, Assistant Professor, Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Canada; J.L. Barton, MD, VA Portland Health Care System, Associate Professor, Oregon Health & Science University, Portland, USA; L. Fraenkel, MD, Professor of Medicine, Department of Internal Medicine, Yale University, New Haven, USA; A. Meara, MD, The Ohio State University, Columbus, USA; L. C. Li, PT, PhD, Professor, Department of Physical Therapy, University of British Columbia; Senior Scientist, Arthritis Research Canada, Vancouver, Canada; P. Brooks, MD, Professor, School of Population and Global Health, University of Melbourne, Melbourne, Australia; M. de Wit, PhD, Patient Research Partner, Amsterdam University Medical Centre, Dept. Medical Humanities, Amsterdam, The Netherlands; D. Stacey, RN, PhD, Full Professor, School of Nursing, University of Ottawa, Senior Scientist, The Ottawa Hospital Research Institute, Ottawa, Canada; F. Légaré, MD, PhD, Full Professor, Department of Family Medicine and Emergency Medicine, Université Laval, Quebec City, Canada; B. Shea, PhD, Clinical Scientist, Bruyère Research Institute, Senior Methodologist, Ottawa Health Research Institute, Adjunct Professor, Department of Epidemiology and Community Medicine, University of Ottawa, Ottawa, Canada; A. Lyddiatt, Patient Research Partner, Canada; C. Hofstetter, Patient Research Partner, Canada; R. Christensen, MSc, PhD, Professor, Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen, & Department of Rheumatology, Odense University Hospital, Denmark; M. Scholte-Voshaar, MSc, Patient Research Partner, Department Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; M.E. Suarez-Almazor MD, PhD, Professor, Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, USA; A. Boonen, MD, PhD, Professor of Rheumatology, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; T. Meade, PhD, Professor, Western Sydney University and Faculty of Medicine, University of Sydney, Sydney, Australia; L. March, MD, PhD, Professor, Department of Medicine, University of Sydney, Institute of Bone and Joint Research and Department of Rheumatology, Royal North Shore Hospital, Sydney, Australia; J. E. Jull, OT, PhD, Assistant Professor, School of Rehabilitation Therapy, Queen’s University, Kingston, Canada; W. Campbell, LLB, Patient Research Partner, Toronto Western Hospital, University Health Network, Canada; R. Alten, MD, PhD, Professor of Medicine, Head of Department of Internal Medicine II, Director of Rheumatology Research Center, Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Charité, University Medicine Berlin, Berlin, Germany; S. Karuranga, Researcher, Access to Medicine Foundation, Haarlem, The Netherlands; E. M. Morgan, MD, Associate Professor, Division of Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, USA; A. Kelly, MD, PhD student, Canberra Rheumatology, Department of Rheumatology, Canberra Hospital, and College of Health and Medicine, Australian National University; J. Kaufman, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia; S. Hill, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia; L. J. Maxwell, PhD, Ottawa Hospital Research Institute, Centre for Practice-Changing Research and University of Ottawa, Ottawa, Canada; D. Beaton, PhD, Senior Scientist, Institute for Work & Health, Associate Professor, Institute Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada; Y. El-Miedany, MD, Professor, Rheumatology and Rehabilitation Ain Shams University, Egypt; Honorary senior clinical lecturer, King's college London, United Kingdom; S. Mittoo, MD, Rheumatologist, Involved Medicine and Adjunct Professor University of Toronto, Toronto, Canada, S. Bartlett, Professor, McGill University, Montreal, Canada; J. A. Singh, MD Professor, University of Alabama at Birmingham, Birmingham, USA; P. Tugwell, MD, Professor, Division of Rheumatology, Department of Medicine, and School of Epidemiology and Public Health ,Faculty of Medicine, University of Ottawa; Senior Scientist, Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.
    K. Toupin-April is funded by the Children’s Hospital of Eastern Ontario Research Institute and The Arthritis Society. J. L. Barton’s research reported in this publication was supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases, part of the National Institutes of Health, under Award Number K23-AR-064372. L. Fraenkel’s research reported in this publication was supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases, part of the National Institutes of Health, under Award Number AR060231-01. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. D. Stacey holds a University of Ottawa Research Chair in Knowledge Translation to Patients. F. Légaré holds a Tier 1 Canada Research Chair in Shared Decision Making and Knowledge Translation. R. Christensen’s research at the Parker Institute is supported by grants from The Oak Foundation (OCAY-13-309). L. March’s research is supported by the Northern Sydney Local Health District. S. Hill is supported by La Trobe University. P. Tugwell holds a Canada Research Chair.
    Address correspondence to Dr. K. Toupin-April, Children’s Hospital of Eastern Ontario Research Institute, 401 Smyth Road, Ottawa, Ontario K1H 8L1, Canada. E-mail: ktoupin@cheo.on.ca.

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Accepted manuscript
Development of a Core Domain Set of Outcomes for Shared Decision Making Interventions: An Omeract White Paper and Stakeholder Interviews
Karine Toupin April, Jennifer L. Barton, Liana Fraenkel, Alexa Meara, Linda C. Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E. Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina Campbell, Rieke Alten, Suvi Karuranga, Esi M. Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J. Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J. Bartlett, Jasvinder A. Singh, Peter Tugwell
The Journal of Rheumatology Feb 2019, jrheum.181071; DOI: 10.3899/jrheum.181071

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Accepted manuscript
Development of a Core Domain Set of Outcomes for Shared Decision Making Interventions: An Omeract White Paper and Stakeholder Interviews
Karine Toupin April, Jennifer L. Barton, Liana Fraenkel, Alexa Meara, Linda C. Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E. Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina Campbell, Rieke Alten, Suvi Karuranga, Esi M. Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J. Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J. Bartlett, Jasvinder A. Singh, Peter Tugwell
The Journal of Rheumatology Feb 2019, jrheum.181071; DOI: 10.3899/jrheum.181071
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